Prostate Cancer

On the 4th Aug I had robotic surgery to remove prostate but 4 days after the catheter had been in had awful discomfort when I sat down (presumably from the tube in the urethra). 2 days after it was removed I had a terrible infection and spent another 3 days in hospital and within days found that this discomfort returned always after sitting down for any length of time. It feels like the urethra is being squashed up while sitting. Doing pelvic floor exercises seems to make worse. Has anyone else had this problem and how long does it last ???.

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  • Hi Holloben1.  Welcome to the forum.

    What you're describing isn't the normal course of events after a RRP.  I should know - I had one in 2010! 

    I think you need to get this followed up and sorted out.  If you can't do the pelvic floot exercises then your recovery from incontinence will be delayed. 

    I'm not a doctor and I've no idea why this is happening to you.  If it were me, then I would return to my GP and we'd have a discussion about where to go next - however, my GP is extremely pro-active and her surgery has been open throughout the pandemic.  Alternatively, you should have been given the name of a Macmillan nurse at the hospital, whom you could contact and explain the problem.

    Please let us know how you get on.  Your experiences will help others in the same situation, but I must admit this is the first case I've heard of.

    Best of luck

    Telemando

  • Hi, Thank you for your reply to my message. I have since had an appointment with the Doctor at the hospital and he advised me that the discomfort that I've been experiencing is caused by Nerve damage or Pelvic Floor Dysfunction from the surgery. It is far better now than it was when I first posted my message so hopfully. My PSA level is now 0.3 and will be having iether Radio Therapy or Hormone Treatment sometime in the new year.  

  • That is good news.  Thanks for the update.  This will help others who may find themselves in the very uncommon situation.

    Good luck with the further treatment.

    Happy new year!

    Telemando

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