Welcome to the Cancer Chat community Holloben although I'm sorry about the issues you've been having since your surgery.

Hopefully some of our members who have experienced similar discomfort after their robotic surgery will offer their tips and advice to you soon but do be sure to let your GP or medical team know if this is continues and/or becomes unmanageable as they'll be in the best position to help.

Our team of cancer nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to speak with them about this as well.

I hope this starts to improve and the rest of your recovery goes well.

Kind regards,

Steph, Cancer Chat Moderator

Hi Holloben1.  Welcome to the forum.

What you're describing isn't the normal course of events after a RRP.  I should know - I had one in 2010! 

I think you need to get this followed up and sorted out.  If you can't do the pelvic floot exercises then your recovery from incontinence will be delayed. 

I'm not a doctor and I've no idea why this is happening to you.  If it were me, then I would return to my GP and we'd have a discussion about where to go next - however, my GP is extremely pro-active and her surgery has been open throughout the pandemic.  Alternatively, you should have been given the name of a Macmillan nurse at the hospital, whom you could contact and explain the problem.

Please let us know how you get on.  Your experiences will help others in the same situation, but I must admit this is the first case I've heard of.

Best of luck

Telemando

Hi, Thank you for your reply to my message. I have since had an appointment with the Doctor at the hospital and he advised me that the discomfort that I've been experiencing is caused by Nerve damage or Pelvic Floor Dysfunction from the surgery. It is far better now than it was when I first posted my message so hopfully. My PSA level is now 0.3 and will be having iether Radio Therapy or Hormone Treatment sometime in the new year.  

That is good news.  Thanks for the update.  This will help others who may find themselves in the very uncommon situation.

Good luck with the further treatment.

Happy new year!

Telemando