Hi Karenk,

A very warm welcome to our forum. I have had 2 bouts of breast cancer in the past 12 years, plus a few false alarms, so I have been through a number of biopsies. All I can say, is that the wait never gets any easier. Most of us would say that this is one of the worst parts of our cancer journey, as thereare so many unknowns and uncertainties. 

I am glad to hear that you don't have much longer to wait. Try to keep yourself occupied with other distractions to help the time to pass a little quicker over the weekend.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi just joined this site reading different comments such an agonising wait for results I'm awaiting my appointment to see if my treatment has worked you feel so lonely at this moment hope all works out for you hang on in there my love thoughts are with you 

Hi,sorry about your news,I have the same diagnose but mine is DCIS high grade,i have done one  surgery but the margins came positive si next week will do mastectomy ,hoping for the best,scary times for us but we need to be strong and we are lucky to have a pre cancer prognose.

wish you all the best 

Hi June

You are going to get through this! And im going to make you laugh because there is a lot of nice nipples tassels on the market these days lol

But seriously my love and thoughts are with you

Big hugs Karen

Hi peca

It is cancer? Not pre cancer? Am confused xx what opp have you had, treatment etc, when and where did u find you lump and how long did u have to wait to get sorted...sorry for questions..head all over like you xxxxx

June  

Haha you need nipples to hang tussles on xxxx xxxxx I am confused...he said lumpectomy......but he removing all breast tissue to chest wall and nipple? Sound more like full removal? Xx

Hugs

June   xx

Hi Jane,

Your story has given me some hope on large lumps....On Monday after being briefly looked at & examined by consultant he said my lump was a cyst & he wasn't concerned. He sent me down to breast screening to have a mammogram & ultrasound and said they would probably drain it. I felt immediate relief but once I'd had the mammogram & was called into ultrasound she said that she was concerned by the lump & proceeded with a biopsy of the lump & swollen lymph nodes under my arm . The consultant was surprised to see me back at the breast clinic & said that it had taken him by surprise. He said lump looked very suspicious & was more likely to be something than not. He wanted to see me back for results on Thursday but he was completely fully booked until Monday! He said there maybe a cancellation but if not Monday. I have obvs been thinking the worse. My lump is large but everything you read states more than 2cm is large! I've convinced myself that they won't be able to remove my breast as the lump is too big & that every ache & pain in my body is now cancer spreading throughout me. Im trying to be strong but I already suffer with anxiety so im not so good at positive thinking ‍♀️ I've been researching private cancer care, I wasn't even sure if it was something you can do but I guess when I get my results this is something that I should ask about then? 
 

xx

The DCIS is precancer or stage 0 cancer,thats my diagnose,bit the cancer cell might be grade 1,2 or 3 .I have grade 3 which is not good so I high risk that the cancer might come back.

I have done one surgery,not suscesfull ,will do another one soon mastectomy.After that I dont know what the treatment will be ,it depense.

I found a small lump close to the niple on ky left breast in July and my gp refered me in one week,and I had the surgery after 2 weeks so really quick.

The tissue that they removed was 11mm.

Hi peca

Am so glad you got sorted quickly...I was seen in Dec last year. They called me in August said they mislaid my paperwork...I am grade 2 had excisional biopsy 3rd Sept...9 month later

Now another removal of all breast tissue and nipple and lymph nodes on 1st Oct I had to wait they apologised xx we are all scared 

Hope it hasn't spread xx won't know ubtil 2 week after removal of everything probably around 14th Oct x

9 months after,not good from their part,but DCIS grade 2 for what I know will take years before becomes invasive so I think it ok.

I wish your margins will be clear negative so you can have a piece of mind ,mine unfortunately came positive in 3 side thats why will do mastectomy.

I wish you all the best,I am here if you have more question ,will help with what I can going throw the same experience makes us strong.

Hope everything goes well in 1st of October,good luck hun.

Juliana!

Hi june

Just stick then on no one needs to know whats under them tassels my lovely lol yeah it is all a bit confusing they dont give easy answers thats fof sure, look at me a week past Monday results are clear from what we tested but due to changes we want to double check; did that stereotactic biopsy put another clip in, i spoke to the consultant and i said what do you think it is! She said at the monent its a mystery, i asked the radiologist when she took an xray before the biopsy and she said they think a radial scar, but they told me on the phone when i got my results it wasnt, so a medical mystery just now, I'll find out on Monday when i go to the clinic, i said to the consultant on Thursday so the results for the first biopsies were fine but i needed a more detailed biopsy because it wasnt where you needed to be looking at? And she said yes hence why they have put another clip in!! She said we are hoping  worst case scenario its a radial scar but we dont know, so i know where confusion comes from because they said it wasn't a Radial scar! So im still in the dark until i go on Monday.

Hugs Karen xx

Hi June,

Both of my cancers were in the lower right quadrant of my breast. I also found a larger lump in my left breast six months after lumpectomy. Fortunately, this was benign, but when I found a second lump in my right breast a year after my lumpectomy, my surgeon was happy to carry out a double mastectomy. I have previously stopped breathing under anaesthetic, so he was  prepared to do this in order to prevent another surgery if the other breast later became cancerous.

I was advised to have radiotherapy after my lumpectomy, but my first surgeon refused to test my other breast.  As a result, I refused to have this treatment while the problem with my other breast was being ignored. When I saw another surgeon 11 months after my lumpectomy, I was referred to see two eminent researchers in radiotherapy. One gentleman told me that I might as well try it still, but the other was quite insistant that there was no point in doing this when there was longer than 3 months from diagnosis. He made a better argument for his stance, so I followed his advice. 

I took Tamoxifen for the first year after my lumpectomy and changed to Letrozole after I had my double mastectomy. I took this for 6½ years and stopped taking this in July 2017. I had 6 lymph nodes removed first time around. Second time, my surgeon intended to take a sample from my left 

breast, but only got fatty tissueafter my mastectomy. It is normal to test the lymph nodes, so please don't worry about this, as yiou are better to know if there is any spread rather than remaining in ignorance.

I didn't have reconstruction post-mastectomy, as this would have meant another general anaesthetic and, the risk just wasn't worth it. I manage well despite this and, use a selection of prostheses for different purposes.

Kind regards,

Jolamine xx

Hi June,

Both of my cancers were in the lower right quadrant of my breast. I also found a larger lump in my left breast six months after lumpectomy. Fortunately, this was benign, but when I found a second lump in my right breast a year after my lumpectomy, my surgeon was happy to carry out a double mastectomy. I have previously stopped breathing under anaesthetic, so he was  prepared to do this in order to prevent another surgery if the other breast later became cancerous.

I was advised to have radiotherapy after my lumpectomy, but my first surgeon refused to test my other breast.  As a result, I refused to have this treatment while the problem with my other breast was being ignored. When I saw another surgeon 11 months after my lumpectomy, I was referred to see two eminent researchers in radiotherapy. One gentleman told me that I might as well try it still, but the other was quite insistant that there was no point in doing this when there was longer than 3 months from diagnosis. He made a better argument for his stance, so I followed his advice. 

I took Tamoxifen for the first year after my lumpectomy and changed to Letrozole after I had my double mastectomy. I took this for 6½ years and stopped taking this in July 2017. I had 6 lymph nodes removed first time around. Second time, my surgeon intended to take a sample from my left 

breast, but only got fatty tissueafter my mastectomy. It is normal to test the lymph nodes, so please don't worry about this, as yiou are better to know if there is any spread rather than remaining in ignorance.

I didn't have reconstruction post-mastectomy, as this would have meant another general anaesthetic and, the risk just wasn't worth it. I manage well despite this and, use a selection of prostheses for different purposes.

Kind regards,

Jolamine xx

Hi

I had abtief call today from a nurse. My nurse will call me Monday...so, I was told it is a lumpectomy I am having but the cancer is also behind the nipple , so that has to be removed xx I am having estrogen blockers...and then waiting for results from my removal...prob be around 14th Oct...they will have another meeting..then tell me the plan when they know more about thier findings xx I been having bad dreams really bad...can't sleep xxx not coping very well at the moment xx I am moody. I cry, I forget things...all sorts xx hope everyone is doing the best they can xxx hugs to all of you xx

Hi June,

The way you are feeling is unfortunately, perfectly normal. Dealing with the unknown is difficult and you still have a number of unknowns to cope with. Here's hoping that, with the cancer being behind the nipple, the margin will not be too close to the chest wall. A lumpectomy followed by oestrogen blockers sound ok. They won't know whether or not any further treatment will be needed until the pathology results come back.

Try to find some task to keep you preoccupied and to help keep your mind off the wait.

Kind regards,

Jolamine xx

Hi

He said something is behind nipple, he is doing 2 cires to the breast wall and lymph nodes xxxx it will be a big hole but he is cutting where the wire on bra usually is and pushing up my extra fat/tissue up to fill the hole where he is removing breast tissue xxxx

Hi June,

It sounds as if your surgeon knows what he is doing and has thought about the aesthetics afterwards. I hope that he can get enough fatty tissue to fill the hole.

Jolamine xx

Hi xx I do have spare lol xxx

Hi June,

Good that you now know what's happening. Also sounds like he's very aware of aesthetics as Jolamine has said. 
Hope you won't have long to wait now xx Keep up your strength amazing lady xx

Hi 

Well the plan so far....

Tuesday covid test and apt with breasy nurse

Wednesday- telephone call pre opp around my health and anesthetic 

Thursday- pre opp..bloods, swobs blood pressure etc then to the Nuclear Medicine to have injections 

Friday - opp xx

Hi June,

All of this is fairly routine. Just think - this time next week it'll al be behind you!

Jolamine xx

It will ne in the lab xxxxxx