Hi Karenk,

A very warm welcome to our forum. I have had 2 bouts of breast cancer in the past 12 years, plus a few false alarms, so I have been through a number of biopsies. All I can say, is that the wait never gets any easier. Most of us would say that this is one of the worst parts of our cancer journey, as thereare so many unknowns and uncertainties. 

I am glad to hear that you don't have much longer to wait. Try to keep yourself occupied with other distractions to help the time to pass a little quicker over the weekend.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi just joined this site reading different comments such an agonising wait for results I'm awaiting my appointment to see if my treatment has worked you feel so lonely at this moment hope all works out for you hang on in there my love thoughts are with you 

Hi Karen,

I am sorry to hear that it was a difficult appointment for you, but that's it all over, apart from another anxious wait.. You're bound to be low tonight, as well as sore, but it's onward and upwards from here. Try to keep yourself occupied, to help pass the time whilst you're waiting. It sounds as if there is still every chance that this could be benign - fingers crossed!

Jolamine xx

Hello ladies,

i got results of my biopsies today and it is DCIS high grade. Really relieved it's at early stage but high grade is less good obviously.  Nurse kept reassuring me it's curable and I would get to see my son turn into a grumpy teenager but I know she can't be sure of that. 
 

will go for mri and depending on outcome might need further investigations.  Operation is booked in for 14th October. Lumpectomy. ( I said I would be happy to do mastectomy but told but told not recommended as it hasn't spread and am still young..46.) then radio. 
 

i am a single mum of a 4 year old and been through divorce over last 2 years.ex  Husband lives overseas.I work part time as a secondary school teacher. I relocated to UK end 2018 so life has been really tough these last few years. I'm lucky to have a sister living nearby and she has been tower of strength for me. 
 

very frightened right now but trying to hold onto the good stats. They didn't tell me the size of the lump. I'm wondering if I can phone to ask? Also whether the timings seem good or whether it's worth considering paying to get this done privately. My breast care nurse said dates are good and they have enough time to investigate if anything shows up on the MRI (don't have date for that yet). She said it's safe and better to get stuff done with nhs. 
 

I'm scared this thing could be growing and spreading all  the time - as doc said they only have the biopsies they took last week to go in atm. 
 

glad to have this group and find some of you ladies got good news m. Thanks for reading! Any thoughts or suggestions are welcome x

Morning jolamine

Ive not slept much the pain isnt too bad but that scan was horrible it was so long and you cant move an inch, i said to the dr so im a medical mystery just now then lol, I knew with mobdays results they werent near to be where they wanted to be, they did a lot of xrays and put in another marker so hopefully they have got close enough now so yes another anxious wait, hardly slept last night I'll sleep today though dreadful going through this experience

Karen xx

Morning Roselamilli

Welcome to the group its normally jolamine that does this bit (shes the mum of the group lol) jolamine puts everyones mind at rest with her knowledge and experience, and reassurance!!!!!

Your going to be ok! They have caught it, you will get the op and be a new woman, and your little one will have his/her mum!!! Yeah it's all scary what we go through, been through a divorce myself and its not easy but you will get there! I joined the group last weekend and everyone is brilliant, as for the NHS nurses that we see they are amazing! Chin up hunni youll get through this you have everyone behind you here

Karen xx

Good morning June

Thought are with you this morning love and big hugs

Karen xxxx

Hi Karen

I am off soon xx will update you on my return xx love and hugs to all xxx

June  

Hi june

Yeah lets us know how you get on, thinking about you

Hugs karen xx

Hi

Am feeling sick.  I been told I have invasive duvtal carcinoma ER positive Her 2 negative 10 mm grade 2 

Is it treatable??? Please anyone? X 

Hi June

Jolamine will be able to help with this i think

My heart goes out to you right now

Love Karen xxxx

In stage 2 breast cancer, cancer cells have not spread beyond the breast or nearby lymph nodes. Knowing the HR and HER2 status of your stage 2 breast cancer can help your oncologist determine which treatments are most likely to be effective. Stage 2 breast cancer is very treatable and the overall outlook is good.

In stage 2 breast cancer, cancer cells have not spread beyond the breast or nearby lymph nodes. Knowing the HR and HER2 status of your stage 2 breast cancer can help your oncologist determine which treatments are most likely to be effective. Stage 2 breast cancer is very treatable and the overall outlook is good.

Hi

They said it reaches the margin, got to have more surgery

Xx

Hi June,

I know that this is not what you wanted to hear, but calm down and let's put this into perspective. It is only grade 2 and it is treatable. It is also Her2 negative. These are three positives to hang on to. HER2 negative cancer cells tend to grow more slowly and are less likely to recur or spread to other parts of the body than HER2 positive cells.

You will know more about any further treatment once your MDT meeting is held post-mastectomy. I am glad to see that you don't have long to wait for this and that you will get your results the following day. 

It is normal to send any tissue removed during surgery to Pathology for analysis and a number of people have to get further surgery, because a clear margin hasn't been attained. This is disappointing, but fairly routine.

Try to keep yourself busy until Wednesday to help the time to pass.

Kind regards,

Jolamine xx

Hi Jolamine

Thankyou so much for the reassurance xxxxx

Nurses have called, said they are fitting me in Tuesday for mammogram and ultrasound then consultant is going to fit me in to see me xxxxxx

June xxx

Hi June

I've not posted on here before but have been reading all the support and thought I would tell you my experience as it seems similar to yours, apart from your long wait.

I had a mammogram in July and was called back as there was concern. I had another mammogram, ultrasound and biopsy the first week in August where there said they were fairly certain it was cancerous. It was confirmed a week later as Grade 2 invasive cancer 6-7mm, ER+ve, PR +ve and HER2 -ve.

I had a lumpectomy and sentinel node biopsy just over 2 weeks later and then had to wait just over 2 weeks for the results. I then got the good news that the margins were clear and so was the sentinel node (they only took one). I have been told that it was Stage 1A, which is the first part of the first stage. This is different from the Grade, which refers to the way the cancer cells look.

it is looking like I will not be needing any further treatment (no radiotherapy or chemotherapy) apart from taking letrazole for 5 years and having annual mammograms for 10 years, if I am able to take part in a research project called Primetime. Even if I don't get accepted onto the Primetime trial, I can probably have the same plan.

So, I would think that you could be in exactly the same position as me in a few weeks time, so although it is a worrying time, there is a light at the end of the tunnel.

take care

Hi

Thankyou for the support and reassurance xx I am grade 2? But I have lump on collar bone and under arm

They don't seem bothered about collar bone but it's grown? They are scanning breast and under arm...wonder if I can ask them to double check the collar bone? Xx

June  

June

In your post at 10.18 today you said it was ER +ve, HER2 -ve, 10mm and grade 2, so apart from being a tiny bit larger, though still pretty small, it's like mine. I was told mine was really tiny and that they don't see many that small. The average at the clinic I went to is around 2cm.

Sorry, I had no lump which could be felt either by me or the doctor, so can't say anything about that, but you should ask them to check anything you are concerned about.

Hi June,

It is always helpful to have your MRI sooner rather than later, as this cuts down on that awful waiting time. It's good to hear that your consultant is going to see you too. If you have any questions, be sure to write them down before your appointment, as it is all too easy to forget something important in the heat of the moment.

Jolamine xx

Hi

Thankyou, I am not sure what to ask when I go , any suggestions please? Xx big hugs

June 

Hi June,

We all have different, if similar concerns. Looking through some of Breast Cancer Care's booklets on breast cancer, these are some of the questions they suggest at your stage:-

When will I have surgery?

How soon after surgery will treatment start?

How long will my treatment last?

Do you think that you will get all of the cancer this time?

How much more breast tissue do you need to remove?

Will I need any sort of reconstruction after surgery, or will my breast still look normal?

Can I have a copy of my Pathology report?

Are there any signs of lympho-vascular invasion?

Am I going to need any treatment post-surgery?

What hormone therapy do you think will be best for me?

What are the side-effects off treatment and, how is this likely to affect me?

Am I  likely to need radiotherapy or chemotherapy?

Is a genomic assay test suitable for me and, if so, which one would you advise?

Your consultant will be likely to answer most of these when you see him/her. I hope that this helps.

Regards,

Jolamine xx

Morning 

Omg Jolamine,  thankyou ever so much xx I will ask all those Tuesday,  thankyou xx

Love and xxxxxx