Hi Fortie,

I’m not currently undergoing treatment but I had a very positive and unusual outcome after starting EOX chemo in 2013. In late September/early October I was given a diagnosis of T3N3M1, with a very poor prognosis. 

Surgery and radio therapy were impossible due to the position of my primary which had grown around my aorta.

Apparently I was a super responder to the chemo. For years I was told it was only a matter of time before it grew back again. 

I was having six monthly then annual CT scans. Last year I asked my oncologist to view them in sequence to compare year on year. He did and then ordered a biopsys of the area. 

Amazingly, there was no detectable sign of cancer. That was six years after my diagnosis and being told I had as little as 8 weeks to live.

The only therapy I had was EOX chemo. No alternative or complementary treatments just chemo and an awful lot of good luck. 

I’d hate to raise false hope but whatever statistics doctors use are only valid for large cohorts of patients. There are always outliers, like me whose data is excluded because it skews the figures. 

Good luck!

Dave

Hi Dave, I hope you all don’t mind me jumping on this thread but I’ve just posted earlier for the first time about a prognosis we were given by my dad’s oncologist on the first appointment of seeing her before any treatment had even been discussed! Unfortunately surgery was not an option for him as pet scan showed  that he also has it in the lymph node very close to the aorta. He is a fit 80 year old and has so far had 2 cycles of Folfox chemo with very minimal side effects so far & is actually now eating absolutely everything no problem with no pain. So this seems hopeful that the chemo is working. He has adenocarcinoma at the junction (T3N1M0 or M1)& symptoms started 4 months ago with pain when eating & then not being able to eat so losing lots of weight, then was diagnosed 3 months ago after an endoscopy. He has put on 9lb in weight as eating normal again. Hoping the prognosis is wrong & unsure if prognosis given is from when symptoms started or from diagnosis or from the time we first saw the oncologist. Can anyone shed any light on this. Yours is a positive message that hopefully gives a little light to others also going through this. 

Hi Dave, I hope you all don’t mind me jumping on this thread but I’ve just posted earlier for the first time about a prognosis we were given by my dad’s oncologist on the first appointment of seeing her before any treatment had even been discussed! Unfortunately surgery was not an option for him as pet scan showed  that he also has it in the lymph node very close to the aorta. He is a fit 80 year old and has so far had 2 cycles of Folfox chemo with very minimal side effects so far & is actually now eating absolutely everything no problem with no pain. So this seems hopeful that the chemo is working. He has adenocarcinoma at the junction (T3N1M0 or M1)& symptoms started 4 months ago with pain when eating & then not being able to eat so losing lots of weight, then was diagnosed 3 months ago after an endoscopy. He has put on 9lb in weight as eating normal again. Hoping the prognosis is wrong & unsure if prognosis given is from when symptoms started or from diagnosis or from the time we first saw the oncologist. Can anyone shed any light on this. Yours is a positive message that hopefully gives a little light to others also going through this.