Non-surgical treatment for oesophageal cancer.

I was diagnosed with oesophageal cancer Dec. 2019, T2N0M0.   I am not suitable for surgery but have had chemoT/RadioT.   Assessment after treatment was unclear, but I was told no further curative treatment was possible.  To clarify position I "went private" for a PET scan - not available on NHS - , which showed oesoph. cancer had been successfully treated, but showed up prostate cancer.   I am now trying to get into a treatmnent path in the NHS for the latter.  Yet to get a r eferral for it from my GP.

Is there anyhone else here having oesoph C who had good initial results from chemo/radio (without surgery) and what was the longer-term outcome?

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  • Hi Fortie,

     

    I’m not currently undergoing treatment but I had a very positive and unusual outcome after starting EOX chemo in 2013. In late September/early October I was given a diagnosis of T3N3M1, with a very poor prognosis. 

    Surgery and radio therapy were impossible due to the position of my primary which had grown around my aorta.

    Apparently I was a super responder to the chemo. For years I was told it was only a matter of time before it grew back again. 

    I was having six monthly then annual CT scans. Last year I asked my oncologist to view them in sequence to compare year on year. He did and then ordered a biopsys of the area. 

    Amazingly, there was no detectable sign of cancer. That was six years after my diagnosis and being told I had as little as 8 weeks to live.

     

    The only therapy I had was EOX chemo. No alternative or complementary treatments just chemo and an awful lot of good luck. 

     

    I’d hate to raise false hope but whatever statistics doctors use are only valid for large cohorts of patients. There are always outliers, like me whose data is excluded because it skews the figures. 

     

    Good luck!

    Dave

  • Hi Davek

    Congratulations on your successful treatment, Can I ask if you had squamous cell or adenocarcinoma, how big and where in the oesphagus?

    My daughter has 8cm SCC tumour at the junction.

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