Non-surgical treatment for oesophageal cancer.

I was diagnosed with oesophageal cancer Dec. 2019, T2N0M0.   I am not suitable for surgery but have had chemoT/RadioT.   Assessment after treatment was unclear, but I was told no further curative treatment was possible.  To clarify position I "went private" for a PET scan - not available on NHS - , which showed oesoph. cancer had been successfully treated, but showed up prostate cancer.   I am now trying to get into a treatmnent path in the NHS for the latter.  Yet to get a r eferral for it from my GP.

Is there anyhone else here having oesoph C who had good initial results from chemo/radio (without surgery) and what was the longer-term outcome?

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  • Hi Fortie,

     

    I’m not currently undergoing treatment but I had a very positive and unusual outcome after starting EOX chemo in 2013. In late September/early October I was given a diagnosis of T3N3M1, with a very poor prognosis. 

    Surgery and radio therapy were impossible due to the position of my primary which had grown around my aorta.

    Apparently I was a super responder to the chemo. For years I was told it was only a matter of time before it grew back again. 

    I was having six monthly then annual CT scans. Last year I asked my oncologist to view them in sequence to compare year on year. He did and then ordered a biopsys of the area. 

    Amazingly, there was no detectable sign of cancer. That was six years after my diagnosis and being told I had as little as 8 weeks to live.

     

    The only therapy I had was EOX chemo. No alternative or complementary treatments just chemo and an awful lot of good luck. 

     

    I’d hate to raise false hope but whatever statistics doctors use are only valid for large cohorts of patients. There are always outliers, like me whose data is excluded because it skews the figures. 

     

    Good luck!

    Dave

  • Hello Dave, 

    Well thanks so much for taking the trouble to post, especially with such a positive message.  I am trying to be very thankful for the rersponse I have had for the treatment to oeso. cancer.   I can't help but be rather miffed that I was left, after my appraisal consultation with my NHS. oncol., feeling that the cancer had only stabilised and that the only direction of travel would be the lethal one.   I am so pleased that I was able to take a second private opinion and private PET scan which is apparently the only sure way (aside from biopsy) of distinguishing scarring after successful (non-surgical) therapy from cancer remaining after unsuccessful treatment.  I'll take the conclusion from the PET scan that my treatment has so far been successful glady, bolstered by your experience that it is possible to have a good outcome without surgery.  Thanks again for your post,  as is said, "you've made an old man very happy"!

    I'm  not half as worried by the news of a cancer in my prostate.   I am now in the process of getting onto some sort of treatment path for that in the NHS initially by getting a referral from my NHS GP to a urologist.

    Best wishes and good health!

Reply
  • Hello Dave, 

    Well thanks so much for taking the trouble to post, especially with such a positive message.  I am trying to be very thankful for the rersponse I have had for the treatment to oeso. cancer.   I can't help but be rather miffed that I was left, after my appraisal consultation with my NHS. oncol., feeling that the cancer had only stabilised and that the only direction of travel would be the lethal one.   I am so pleased that I was able to take a second private opinion and private PET scan which is apparently the only sure way (aside from biopsy) of distinguishing scarring after successful (non-surgical) therapy from cancer remaining after unsuccessful treatment.  I'll take the conclusion from the PET scan that my treatment has so far been successful glady, bolstered by your experience that it is possible to have a good outcome without surgery.  Thanks again for your post,  as is said, "you've made an old man very happy"!

    I'm  not half as worried by the news of a cancer in my prostate.   I am now in the process of getting onto some sort of treatment path for that in the NHS initially by getting a referral from my NHS GP to a urologist.

    Best wishes and good health!

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