Hi is anybody still on this thread? I'm kinda new to this club and just about to start my 1st cycle of FLOT before surgery. Still so many unknowns including how much stomach I'll have left (if any). Won't know 'Until we get in there, and you might have an osopharectomy too'' is, though understandable, not the most comforting quote I've ever heard. Anyway just thought I'd say HI if anyone is still around!?

Hi Shayde, I still get updates when people post as do others so still active.Sorry to read your diagnosis but get the chemo and surgery done and hope it goes well. I’m nearly 3 years post chemo with FLOT and then surgery then more chemo. I found the cumulative effects challenging second time round but got through it. Take it steady I found round one felt ok day 2-3  round 2 about day 3-4 and so on. Made sure I got out and about as much as possible when felt ok in between ie pre-habilitation get as fit as you can for surgery as it’s a big op! Eat as much as you can and try and gain weight you will lose it post surgery and recovery I ate ginger biscuits as helps nausea and get a soft toothbrush and used difflam oral rinse also. Good luck and if not sure ask here

Again sorry I wasn't here. I'm not normally so flaky. I'm so sorry you're going through all this again. Hated that pump but I guess it's a necessary evil we must endure. I had a problem getting a telephone appointment yesterday at my Gp's.... Desk Sergeant told me to ring 111 (for uncrontrollable wind LOL hubby just said to her have you had cancer or chemo?...Next minute put through to the clinical team They were SUPER sweet and gave me my own direct number to THEM saying "This will save you the rigmarole at the desk!!" Then the told DR what I wanted and the Dr rang me back and I'm getting what I wanted on repeat prescription LIKE I ASKED IN THE FIRST PLACE LOL. ( I don't take things easily LOL) Good luck with your GP and I hope you can still have some fun somehow. Hopefully I'm better prepared for Round 2 so I'll try and pop in more often. XX

Quick question if you don't mind me asking. Why did you get a pump are you still getting FLOT?

Not flot this time its filfax or something I have thing connected to my picc line for  48 hrs bloody awkward 

I am having different chemo this time and have thing connected to picc line fir 48 hrs bloody awkward 

Oh hell 24 is bad enough sorry bud. I was confused cos I didn't think you'd be on FLOT after what you've said and stuff but it's the only temp pump I know (so far)

Just be posititve and cancer ca f##k off big time its hard I know . Aldo if you want to have a cry go for it . I have my family close by to support me which is nice . Stay strong 

This time I am on a different chemo gives me the upset stomavk and po#s plus flaking skin extremely tiredness . I take lopomarade pills for p##os and just chill on sofa fed up with tv though got appointment tomorrow for picc line dressing change 

Aww sounds awful. 

Strangely I seem to be mostly handling it Ok (NOW bit of a mess back when they first confirmed it after my biopsy.)  My biggest issue was slime (I knew it was vomiting cos all my drinks stayed down and my poor tummy couldn't work out what was happening while I was retching for Britain LOL) and incredible wind. Finally got both under control yesterday I think. Cycle 2 is Tuesday. But today I feel pretty good so hope I'm as positive next week. My family are awesome too but it's taking one hell of a toll on my poor hubby. He already has SEVERE mental health, he's driven me mad because his brain was so full of watching me suffer there wasn't any room for common sense or observation etc....but I got good news for him when he wakes up. I had some chicken in white sauce today and my tummy has stopped saying it's ALWAYS hungry my saliva buds have finally started working so I can taste again AND I've put a pound on since he last saw me!! (Sounds mad but I can bounce pretty quick sometimes now just got to keep improving ready for round2!!

Yep , shady ‘great’ stuff aye. Husband was exactly the same, and my friend with BC. Really for about 5-6 days then good- ish for 4 - then the NEXT cycle -  so one lot done . Chemo is pretty foul, but does the job.

Yep , shady ‘great’ stuff aye. Husband was exactly the same, and my friend with BC. Really for about 5-6 days then good- ish for 4 - then the NEXT cycle -  so one lot done . Chemo is pretty foul, but does the job.

Hi Hilts glad it's not just me, but I wish they had a med for the slime, the chemo and the cancer I can deal with THAT stuff is gonna kill me (I'm joking of course (I hope) but I'd have been eating much earlier without it. I mean it's bad enough you've just spent months of having tests and procedures that involve fasting your food intake gets messed up anyway and for me I also had the GP checking my bloods for diabetes and cholesterol (MORE fasting) NOW they wonder why I'm struggling to eat much HA Oh the list of dates I could point to LOL. Had my biggest tea so far tonight (since cycle 1 started anyway) and half a bacon omelette earlier today so did REALLY well!