osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

  • Hi  6 years ago i had 7 sessions of FLOT it gave me 6 years of cancer free in the middle of it I had major surgery to remove oesophagus . Unfortunately the cancer has returned and it aggressive this time and is terminal 

  • Oh I'm so sorry to hear that. This is the suckiest disease ever and the outcomes are just so random and unfair. Hugs Bud (not that that helps much but I'm still new here so don't have the right words yet) What's acceptable and what's just blah blah kind of thing, you know!? Sorry, 1st cycle yesterday so head just getting back to (my) normal and words are never my best quality. X

  • You need to think positive and cancer can bog off . You got a family to support you like me so please think positive and let them do whatever its a bar tead cancer xxx

  • I promise I'm doing my best. It's hard to feel sick when you don't feel any different though, anyway. I suppose this group is one of the few that can understand that. The salad for the rabbits bit me this morning (straight out the fridge...it was weird I honestly thought the cabbage was prickly) so I guess my fingers are going to play up today now LOL Take care buddy Xx

  • Wow you need to be careful are you on blood thinners . Luckily I am not this time round . I am waiting for my chemo to start been here since 8.00am bored though xxx

  • Well had my 3 cycle of chemmotherapy yesterday seem ok just feel tired out so jot 36° yesterday factor fifty all over ecposed bits got to do some shopping soon catch up later 

  • Had my chemo eventually came home with pump fitted to arm had thst taken off today . Om Monday this week went to Maggies to get some information about ehat I can claim. Need this form to signed by doctor which havent done yet they are so busy  . It will be done asap though

  • No I meant the neoropathy in my fingers kicked off. Cabbage is not prickly (was just cold LOL) But no, I'm not on thinners either. Sorry not been online the first 6 days were ROUGH, but probably only by my standards. I hate throwing up so any nausea panics me then I got incredible wind (though burping without being winded like a baby or retching) has improved already) so couldn't face ANYTHING properly and wind pain etc then the retching....caused by all the excess slime (as I call it). Noone told me chemo would make that worse LOL. Anyway day 7/8 things started getting better. Got Windeez, Oxo and chicken and Leak cupasoup on the regular better sleep and currently feeling pretty reasonable though I have a lot of improving to do and less than a week till next cycle (Literally a week today) oh joy. But I will get there I hope. Also countless issues and stress over the weekend with my 'team' and the 24 hour hotline that HANGS up on me!!! but yeah not too bad today.Thank you. 

  • Again sorry I wasn't here. I'm not normally so flaky. I'm so sorry you're going through all this again. Hated that pump but I guess it's a necessary evil we must endure. I had a problem getting a telephone appointment yesterday at my Gp's.... Desk Sergeant told me to ring 111 (for uncrontrollable wind LOL hubby just said to her have you had cancer or chemo?...Next minute put through to the clinical team They were SUPER sweet and gave me my own direct number to THEM saying "This will save you the rigmarole at the desk!!" Then the told DR what I wanted and the Dr rang me back and I'm getting what I wanted on repeat prescription LIKE I ASKED IN THE FIRST PLACE LOL. ( I don't take things easily LOL) Good luck with your GP and I hope you can still have some fun somehow. Hopefully I'm better prepared for Round 2 so I'll try and pop in more often. XX

  • Quick question if you don't mind me asking. Why did you get a pump are you still getting FLOT?