Hi is anybody still on this thread? I'm kinda new to this club and just about to start my 1st cycle of FLOT before surgery. Still so many unknowns including how much stomach I'll have left (if any). Won't know 'Until we get in there, and you might have an osopharectomy too'' is, though understandable, not the most comforting quote I've ever heard. Anyway just thought I'd say HI if anyone is still around!?

Hi Shayde, I still get updates when people post as do others so still active.Sorry to read your diagnosis but get the chemo and surgery done and hope it goes well. I’m nearly 3 years post chemo with FLOT and then surgery then more chemo. I found the cumulative effects challenging second time round but got through it. Take it steady I found round one felt ok day 2-3  round 2 about day 3-4 and so on. Made sure I got out and about as much as possible when felt ok in between ie pre-habilitation get as fit as you can for surgery as it’s a big op! Eat as much as you can and try and gain weight you will lose it post surgery and recovery I ate ginger biscuits as helps nausea and get a soft toothbrush and used difflam oral rinse also. Good luck and if not sure ask here

Had my chemo eventually came home with pump fitted to arm had thst taken off today . Om Monday this week went to Maggies to get some information about ehat I can claim. Need this form to signed by doctor which havent done yet they are so busy  . It will be done asap though

No I meant the neoropathy in my fingers kicked off. Cabbage is not prickly (was just cold LOL) But no, I'm not on thinners either. Sorry not been online the first 6 days were ROUGH, but probably only by my standards. I hate throwing up so any nausea panics me then I got incredible wind (though burping without being winded like a baby or retching) has improved already) so couldn't face ANYTHING properly and wind pain etc then the retching....caused by all the excess slime (as I call it). Noone told me chemo would make that worse LOL. Anyway day 7/8 things started getting better. Got Windeez, Oxo and chicken and Leak cupasoup on the regular better sleep and currently feeling pretty reasonable though I have a lot of improving to do and less than a week till next cycle (Literally a week today) oh joy. But I will get there I hope. Also countless issues and stress over the weekend with my 'team' and the 24 hour hotline that HANGS up on me!!! but yeah not too bad today.Thank you. 

Again sorry I wasn't here. I'm not normally so flaky. I'm so sorry you're going through all this again. Hated that pump but I guess it's a necessary evil we must endure. I had a problem getting a telephone appointment yesterday at my Gp's.... Desk Sergeant told me to ring 111 (for uncrontrollable wind LOL hubby just said to her have you had cancer or chemo?...Next minute put through to the clinical team They were SUPER sweet and gave me my own direct number to THEM saying "This will save you the rigmarole at the desk!!" Then the told DR what I wanted and the Dr rang me back and I'm getting what I wanted on repeat prescription LIKE I ASKED IN THE FIRST PLACE LOL. ( I don't take things easily LOL) Good luck with your GP and I hope you can still have some fun somehow. Hopefully I'm better prepared for Round 2 so I'll try and pop in more often. XX

Quick question if you don't mind me asking. Why did you get a pump are you still getting FLOT?

Not flot this time its filfax or something I have thing connected to my picc line for  48 hrs bloody awkward 

I am having different chemo this time and have thing connected to picc line fir 48 hrs bloody awkward 

Oh hell 24 is bad enough sorry bud. I was confused cos I didn't think you'd be on FLOT after what you've said and stuff but it's the only temp pump I know (so far)

Just be posititve and cancer ca f##k off big time its hard I know . Aldo if you want to have a cry go for it . I have my family close by to support me which is nice . Stay strong 

This time I am on a different chemo gives me the upset stomavk and po#s plus flaking skin extremely tiredness . I take lopomarade pills for p##os and just chill on sofa fed up with tv though got appointment tomorrow for picc line dressing change 

Aww sounds awful. 

Aww sounds awful. 

Had picc line dressing done . Got a coach trip booked on Sunday to southwold Suffolk be nice. No driving 

OOh have a nice time! Hoping to go to Bournemouth but they booked cycle 3 for the day before or day OF us leaving (been booked since before diagnosis (and I DID tell them) but Oncologist said if my bloods on Monday are good he'll let me defer cycle 3 by a week and then I have to hope there's a seat available. Bournemouth was a 3 fold thing. My daughter WAS at Uni there so every time we went before we spent a lot of time just moving people's stuff around LOL, But this time was/is going to be hopefully longer to enjoy, watch her friends graduate, and fit the REST of her stuff in the car we couldn't get at Christmas. So waiting on Monday with bated breath. 

As for cycle 2 IF 3 gets deferred I feel more positive about starting 2 as I still couldn't eat anything (saliva glands just refused to work) till Thursday just gone. So over a week just to get over side effects hasn't given me much time to get ready but I'm trying and today was a really good day.