I don’t blame him - I have mixed feelings everytime I return to this site, for obvious reasons. 
Always happy to answer awkward questions. 

Hey Dave.

so glad you are still here too remember you well with your very reassuring wisdom . Another 6 years ticked. Here’s to many more.

Take care

and me too will answer any questions 

Hey- yes, They were always twittering about husbands weight - need to gain every time he was seen. With hindsight he now has no probl ms with it now - then. He kept dropping , but for me it was always “really who would think one would loose weight with all that lovely appetising chemo and having a load of your guts removed “ he couldn’t bare those supplement drinks enough to make you vomit- but did enjoy lashings of olive oil, melted cheese in everting, Rodda cream , and large volumes of ice cream generally. 

• Hi all, I did reply Shayde but for whatever reason it appears not to have sent!
  
  

My husband has recently had his 5 years appointment and has been discharged yeh! His was a long and complicated journey (documented on here) which you may or may not want to read. However everything crossed he is doing well. 
Hilts and her husband were on a similar journey (everyone is different) a few months ahead of us. Weight gain is good but you can only do what you can. 

Drinking water during chemo helps and the Fortisips are better over ice cream. Exercise is also key as the operation is big and heart health is important. Hilts started the going up and downstairs several times routine! 

I remember you too Dave and your positive outcome. Hope is essential along with doing what you can to help yourself both mentally and physically and I appreciate this isn’t easy. I felt overwhelmed at times as the patient support role. It’s tough but doable and the staff are amazing. My best wishes to you and everyone who is facing this diagnosis- one day at a time and there are people who live and get back to life albeit a new normal. 

keeping the faith as always

Milly

Craving ice cold water but it has always made me instantly hungry and gassy which now is even worse so little sips only unfortunately so substituting with ice lollies when I need a cold drink lol. Stairs is a given in a house of 5 one with epilepsy and a needy daughter and my 95 foot long garden is a long and bumpy slope so I get quite a bit of natural exercise but I got myself an exercise bike too to get even better. 

I agree with the shakes. i was stoked when I FIRST got some....sick to death of them now...too slimy and the plus ones the biopsy hospital made me drink were worse. They ALWAYS send wayy too much vanilla now too LOL

It's currently early hours of Saturday morning however and I'm suddenly feeling a lot less confident now treatment is imminent. Went to Dave day today (big bike event...had been planning on doing the whole run up to Barrow but thanks to all this kicking off just went to the meet up at Knutsford. Hubby has back issues and was in immense pain but kept it quiet...so quiet I thought I'd upset him so wasn't the best day all round, nice but felt wrong if you get my drift.

Hopefully, this feeling will pass like it did when I was first told and I admit I didn't get much sleep today so probably that's not helping either. 

Made an arm band though to keep stop the picc line flapping around, so I get to sport that on Monday I guess!

Thank you all for coming back I'm sorry for all the bad memories but I really appreciate you all sharing them with me.

Thank you guys and best wishes to you all.

Hi Hilts I've finally braved the first few pages of this very long but invaluable post and noticed you and Milly and the guys talking about the J tubes and specifically 'night feeds'. I expected some sort of post op pause on physically eating due to stitches and such , but nobody has mentioned night feeds once. Does everybody have to have them and if they're eating well why is it necessary? I can't remember who it was but it was interesting to see someone with a very similar grading as me (T3/N1/2/M0 in my case). It was bad enough waking up after the biopsy/laparoscopy to find they shoved a NG tube in cos 'you had a very tiny gap'....yes but if you'd asked I was still eating...the joys of not being treated at your local hospital who have ALL your records. Then just cos I 'had' one they all decided I needed to stay in 3 days and fight my way out by forcing 5 of those damn drinks down cos they wouldn't even let me TRY to eat. As it turns out my 'sore' throat soon put a stop to it anyway but now that's all cleared up it sounds like I'm heading back there in 2 months time and would like to know what I'm 'looking forward' to. honestly that all creeped me out but my hubby happily flushed my NG tube for me...not sure if I'll be able to wake him for night feeds though his meds are STRONG!!

Hey RayB. Sooo good to see you here . You were the original poster who  started this long running board that has helped so many of us on this ultra helpfully place . 
So you have some unwelcome guests return- well you threw them out before , so here’s to you doing it again . Immunotherapy is the future .

Shayde- that’ll be your ‘nerves’ getting to you. It is quite a big thing to get your head around aye. The psychological effect of having unwelcome guest aboard is probably worse than the physical . oo much information is rather an understatement - the do this, do that on a daily basis nd other giving you advice whether asked for or not . My advice for what it’s worth is get a few good books, or whatever you like and let the rest just happen. I even just nod and agree with whatever stuff they tell me and then chose for myself whatever is useful to ME. However you feel is absolutely fine - I still feel 6 years in - did that (OC) just really happen. 
So as ever everyone

KEEP THE FAITH

Oh and the j tubes- Husbands finally just fell out . It was useful pumping calories in when he was fast asleep , took the pressure off from the incessant nagging about his weight. So just go with it. As for post op eating- they had him on food 2 day after sugery- jelly and uce cream type stuff. They chucked him out of hospital on Xmas eve - 9 days post op and he did a fair job of Xmas dinner the next day