osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

Parents
  • Hi Rayb 6 years ago I was diagnosed with the same . I had flot chemo as well 4 sessions major surgery then some more chemo . Flot made me feel like *** but I had six yesrs of good quality life . Unfortunately at beginning of March I was taken into hospital with inflamed pancrease i had a ct scan then a mri scan . Which unfortunately it gound three tumors which were behind galblader not pancrease but they caused problem . They cant be operated on this time . I am taking part in trials for immunothrepy and chemotherapy . It all seems ok got ct scan next month to see how they are doing because its aggresive this time . Chemo knocks me for six 

Reply
  • Hi Rayb 6 years ago I was diagnosed with the same . I had flot chemo as well 4 sessions major surgery then some more chemo . Flot made me feel like *** but I had six yesrs of good quality life . Unfortunately at beginning of March I was taken into hospital with inflamed pancrease i had a ct scan then a mri scan . Which unfortunately it gound three tumors which were behind galblader not pancrease but they caused problem . They cant be operated on this time . I am taking part in trials for immunothrepy and chemotherapy . It all seems ok got ct scan next month to see how they are doing because its aggresive this time . Chemo knocks me for six 

Children
  • Hey RayB. Sooo good to see you here . You were the original poster who  started this long running board that has helped so many of us on this ultra helpfully place . 
    So you have some unwelcome guests return- well you threw them out before , so here’s to you doing it again . Immunotherapy is the future .

    Shayde- that’ll be your ‘nerves’ getting to you. It is quite a big thing to get your head around aye. The psychological effect of having unwelcome guest aboard is probably worse than the physical . oo much information is rather an understatement - the do this, do that on a daily basis nd other giving you advice whether asked for or not . My advice for what it’s worth is get a few good books, or whatever you like and let the rest just happen. I even just nod and agree with whatever stuff they tell me and then chose for myself whatever is useful to ME. However you feel is absolutely fine - I still feel 6 years in - did that (OC) just really happen. 
    So as ever everyone

    KEEP THE FAITH

  • Oh and the j tubes- Husbands finally just fell out . It was useful pumping calories in when he was fast asleep , took the pressure off from the incessant nagging about his weight. So just go with it. As for post op eating- they had him on food 2 day after sugery- jelly and uce cream type stuff. They chucked him out of hospital on Xmas eve - 9 days post op and he did a fair job of Xmas dinner the next day

  • So sorry to hear your most recent news. Good luck and hope things improve massively for you. Good luck buddy.