osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

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  • Hi guys. Sending love to you all. We have just lost my mum to this cancer after only 6 months post surgery. My advice push for the chemo after and push for all the scans you can get after too. If this had been possible for mum then she might still be here. Xx

  • Hi

     

    I too would advise, push push push.  My brother had been visiting his GP since March with fears of this dreadful cancer and was pooh poohed and told it was acid reflux.  Eventually at the end of August he had an endoscopy and a biopsy.  By this time he had lost 1 and half stones in 6 weeks.  He was rushed into hospital on 20th September, and passed away on 25th October without having had any treatment.  I could go into far more detail but would not wish to distress anyone on this forum.  It was obviously too late for him and I find it extremely upsetting that in spite of him doing the right thing and going to his doctor, (and advising the doctor that his paternal grandfather had died of the same disease) he was sent away and not seen to in sufficient time to give him a few months quality of life.  

     

    Make a nuisance of yourself, push and push for scans and tests and treasure every moment you have xx

  • Good Morning everyone, hope you are all good xx We did it, myself and Shaun got married yesterday up in Gretna Green, the day was beautiful, happy and full of friends, and laughter xx Chemo starts on Thursday for him so one more day of rest before we fight this xx love to all from Mr and Mrs Barber xxxx

  • How wonderful ! Huge congrats Mr & Mrs Barber !!

  • That's wonderful news Manfyh! Congratulations! :happy:

    I hope you're able to enjoy these next few days of wedded bliss together before Mr Barber's chemo starts on Thursday.

    Fingers crossed he doesn't experience too many side effects but if either of you have any questions about the chemo or would just like to talk things through with someone then don't hesitate to get in touch with our cancer nurses. They're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Wishing you both all the best on this journey and a wonderful, happy marriage.

    Steph, Cancer Chat Moderator

  • Heeeyy - big clapping emojis - smiling face with party bunting emoji.

    Well done Mr &Mrs Manfyh xxxx

    You might think it is just the 2 of you, tucked up in wedded bliss but nope, we ALL on here are tucked up with you !!!!
    Keep keeping that faith

    Hilts x

  • Hi All 

    Hope you are all continuing to improve - or getting on with the treatment. 

    Because I had a tracheotomy for 8 weeks post op, my breathing is still very bad and I can't walk far or do anything without getting very breathless. I am waiting for Pulmonary Rehabilitation but due to Covid the wait for assessment was 18 weeks - 9 have gone but still a long wait. Has anyone else needed this - and if so was it successful?  I am thinking about trying to find a private alternative- not sure where to look, but if it will help it will be worth it 

    Thank you

    Andi xx

  • Hi everyone,

    Unfortunately my Dad passed away last week. The regular members on here will know the journey we have been on for the last 2 yrs.

    Post surgery my Dad had a lot of complications and never managed to recover.

    May I take this opportunity to thank all the very good, supportive people on this 'rollercoaster' journey that we are all on.

    There have been many ups and downs and I have found this forum incredibly useful and inspiring- it seems that the people commenting on here, are the people that only 'truely' understand what you're going through.

    If anyone wants to contact me directly, to discuss anything, please feel free to private message me - I feel that if I can offer any support and experience, I will do. We have experienced many things good and bad.

    Good luck to everyone on this *** journey.

    Lee

     

  • Oh Lee - I am so very sorry to hear your sad news. It was such a long battle for your dad. My thoughts and prayers are with you and your family 

    Andi xx

  • Awwww Lee, 

    What on earth can I say to you, I truly do feel  for you x xxx
    but Lee, thank YOU, For being on this rollercoaster with us. We  all , I think feel for the others ,the highs and the lows.

    You were/ are an absolute gladiator for your Dad, you did him proud. 
    For once in my life I am a bit lost for words !
    PLEASE, do check in on here, we would genuinely miss you

    So for now Lee, bye and speak soon

    xxxxxx

    Hilts

  • Hi Lee, hope you're OK and thanks for the update.

    We've all ridden that Roller Coaster with you and know your Dad would be immensely proud of you and how you helped and advised him along the way, and sharing bits from here with him and back to us too - you were most definitely a rock for him.

    One thing my Mum said to me when she passed which has always stuck with me and I hope you can apply this with your Dad too is that it's OK to be sad for a little while, but when you think of me I want you to do it with a smile and not be sad. So, focus on the happy memories mate and always think of him with a smile on your face !

    Raise a sangria / San Miguel for me mate and keep on trucking !

    God bless ...

Reply
  • Hi Lee, hope you're OK and thanks for the update.

    We've all ridden that Roller Coaster with you and know your Dad would be immensely proud of you and how you helped and advised him along the way, and sharing bits from here with him and back to us too - you were most definitely a rock for him.

    One thing my Mum said to me when she passed which has always stuck with me and I hope you can apply this with your Dad too is that it's OK to be sad for a little while, but when you think of me I want you to do it with a smile and not be sad. So, focus on the happy memories mate and always think of him with a smile on your face !

    Raise a sangria / San Miguel for me mate and keep on trucking !

    God bless ...

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