Hi,

Ive just been directed onto this thread, not even sure I'm posting correctly ‍♀️
anyhoo, I was diagnosed with stage 4 oesophageal cancer in 2018, mts to lymph and liver (4), told I'd probably have 5 months no treatment, 11 months with, fast forward 2 years and 7 months later I'm still here. Various lines of chemo later, my latest scan CT and MRI have shown that there are now only two mets in the liver, one 11mm and the other 10mm, nothing in the oesophagus or lymph nodes. So from being definitely not operable they are now offering surgery. I have a zoom consultation with the Prof on Wednesday so will find out exactly what's on the table as it were! was 56 years old female when first diagnosed, non smoker and didn't drink, only symptom was food getting a bit stuck! 
ive read all the threads to this and must say I'm pretty trepidatious about the surgery but as it is potentially a game changer, I'm not going to refuse it.

hi Tabnabs

Wow thats quite a different journey to most of us on here and very encouraging to all those starting a stage 4  diagnosis  , us mere stage 2 mortals who have been treated over a year should count ourselves lucky , well i do anyway as i am 95% ok and cancer free now , its great to hear you are on the curative path now and i am sure everyone will be delighted for you , never worry about the surgery that is the easiest part and easy to cope with , i look forward to hearing  from you on here as you progress towards your cure , take it easy and god bless everyone on here.

regards

Douglas

Hi Daisy

Wow thats fantastic to hear , you can take it easy now and best wishes for the future.

regatds

Douglas

Thank you and I hope you remain well Douglas x

Hi Daisy,

that is amazing news, so happy for you both

x

Wow Daisy that is absolutely brilliant news! So pleased for you both! So good to hear! This will inspire so many others  on here.

Yes celebrate in style. 
 

keeping the faith

Milly

OMG OMG OMG, 

DAISY71!!!!!!
OMG- oh I'll stop now and try and stop the OMG.

That is such fantastic news, I am actually sitting here, all smiling and not quite sure what to do with myself or say.

What you guys must be feeling is probably beyond words. You are probably looking at each other and thinking ' did we hear the doc correctly', is it true etc etc.

Isn't it weird how we have all never met , but such news from us lot is air punchingly good.

I have fences that needs some work- if he's 'bored' like ((((::::

May Shepard's pie remain OFF the menu for many years to come ((::

we all keeping the faith

All my very best wishes

Hilts

Hi Milly

That's great news on the eating - it's been a huge postive for me too looking at the number of issues that some people seem to acquire post op.

Just this dammed effusion to sort out - I think your Fffs deserved a few more f's, but again it's good that your consultant is not resting and pushing your case.

Keeping the ffffaith

bfg

Hi Daisy, that's fantastic news, it's so good to hear positive outcomes...good luck

Lee 

Hi Daisy

Just keeping the trend going - that's ffffantastic and brilliant news.  

I'll definitely be celebrating with you this weekend once I stop all my round of meds this week.

cheers

bfg

Hi Bfg,

Thanks for your reply. Dermatology went well  - vasculitis caused by a severe reaction to antibiotics as they suspected. Blood tests etc all fine. So a 6 month open appointment given - just as a precaution  - brilliant NHS again. Just to make you all smile when the doc asked the type op he'd had he almost said vasectomy lol.

CT scan on Saturday to check pleural effusion and to double check Oesophagectomy. Our consultant is outstanding as I'm sure many are in the NHS. 
 

Sooo

keeping the ffffaith (that made me laugh)

Milly
 

Howdee Millie58, 

Good Good, 

So how is he fairing after his vasectomy then ?? Poor chap (:.

Mind you, in for a penny n'all.

Things are being 'ticked off' .

i noticed in a previous post that one of the consultants had said "he'll be walking down the high street in a year" !!!!.

I would put money on it will be way before that, yes, he has been through the mincer big style, and has had a lot of 'extra's', but I bet he'll fancy a stroll way before then.

My guy found it really really difficult initially, without all the 'extra's' , he'd go to the end of the road ('about 200yrds)and back and that was it done in for the rest of the day, then he 'pushed' it and went over the shop (about 1/4 mile, there and back) and so on. He still gets vv tired, if he does something like krypton factor style water parks (duffer), but it is really a plod, plod thing- 

So glad that stuff is starting to come together for you all.

Keeping it up and keeping the faith

Hilts

Howdee Millie58, 

Good Good, 

So how is he fairing after his vasectomy then ?? Poor chap (:.

Mind you, in for a penny n'all.

Things are being 'ticked off' .

i noticed in a previous post that one of the consultants had said "he'll be walking down the high street in a year" !!!!.

I would put money on it will be way before that, yes, he has been through the mincer big style, and has had a lot of 'extra's', but I bet he'll fancy a stroll way before then.

My guy found it really really difficult initially, without all the 'extra's' , he'd go to the end of the road ('about 200yrds)and back and that was it done in for the rest of the day, then he 'pushed' it and went over the shop (about 1/4 mile, there and back) and so on. He still gets vv tired, if he does something like krypton factor style water parks (duffer), but it is really a plod, plod thing- 

So glad that stuff is starting to come together for you all.

Keeping it up and keeping the faith

Hilts

Hi Hilts,

Fingers crossed he will be walking further than that and sooner! He has improved since being home. Really hoping the CT scan shows the fluid has significantly reduced and his lung capacity increased. Your husband is an inspiration and yes gradual increase is the aim. Next step is hoping a coffee at a local National Trust property fingers crossed (can't do emojis as you've said too).

I normally sing in a choir so I've been doing breathing exercises with him and lots of Arhs lol. He was told at school to mime! (The good old days eh lol)

Keep it up and keeping the faith

Milly