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osophagus cancer diagnosis

RayB
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Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

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    Hi,

    Ive just been directed onto this thread, not even sure I'm posting correctly ‍♀️
    anyhoo, I was diagnosed with stage 4 oesophageal cancer in 2018, mts to lymph and liver (4), told I'd probably have 5 months no treatment, 11 months with, fast forward 2 years and 7 months later I'm still here. Various lines of chemo later, my latest scan CT and MRI have shown that there are now only two mets in the liver, one 11mm and the other 10mm, nothing in the oesophagus or lymph nodes. So from being definitely not operable they are now offering surgery. I have a zoom consultation with the Prof on Wednesday so will find out exactly what's on the table as it were! was 56 years old female when first diagnosed, non smoker and didn't drink, only symptom was food getting a bit stuck! 
    ive read all the threads to this and must say I'm pretty trepidatious about the surgery but as it is potentially a game changer, I'm not going to refuse it.

  • Offline in reply to Tabnabs

    hi Tabnabs

    Wow thats quite a different journey to most of us on here and very encouraging to all those starting a stage 4  diagnosis  , us mere stage 2 mortals who have been treated over a year should count ourselves lucky , well i do anyway as i am 95% ok and cancer free now , its great to hear you are on the curative path now and i am sure everyone will be delighted for you , never worry about the surgery that is the easiest part and easy to cope with , i look forward to hearing  from you on here as you progress towards your cure , take it easy and god bless everyone on here.

    regards

    Douglas

  • Offline in reply to Hilts
    Hi Hilts, Yes his eating is a definite positive. As I’ve said before the original op couldn’t have gone better. This pleural effusion (left lung) is the main problem as result of being ventilated fora long period. He then got pneumonia. The difficulty is that it’s in pockets like bubble wrap instead of being flat like two pieces of cling film. This makes it difficult to treat/drain. We had an upsetting day on Wednesday as the respiratory consultant was quite blunt and basically said he might be able to walk up the high street in a year! Fffs However his consultant surgeon feels differently and is speaking with other specialists to look at options. There is still hope that the antibiotics and his own body may sort it. He is walking around the house more. The sudden flare up on his legs added more stress but hoping the severe reaction was made worse by the sexy socks. The rash has subsided. Appointment with dermatology tomorrow. Waiting for CT scan. So a flaming unfortunate incident has created these problems but Keeping the faith Milly
  • Offline in reply to Hilts

    Hi Hilts, and all!

    We have been quietly 'enjoying' chemo free time, ahead of possible radiotherapy. My husband had a PET scan a couple of weeks ago, to see how his mets on his lungs etc were. We got an ominous call yesterday (fathers day) at 5:30pm, asking us togo in to the hospital today at 9am, as the results were 'complicated'. Needless to say didn't  sleep well! 
     

    After a lot of waffling, the doctor announced that my husband is in fact in full REMISSION! Cancer free! 
    we just couldn't believe it, and are still in shock, albeit a very lovely kind of shock this time, it just soesnt seem possible after all these months of fearing the worst that he is clear. 
     

    I am aware it might come back at some point, but for now, we are celebrating, And feeling very lucky. 
    I hope that everyone here gets the same good news too, I wish you all very well and am very grateful that this forum was here when I thought we had no hope at all. It really helped. Thank you x

  • Offline in reply to Daisy71

    Hi Daisy

    Wow thats fantastic to hear , you can take it easy now and best wishes for the future.

    regatds

    Douglas

  • Offline in reply to dooggreg

    Thank you and I hope you remain well Douglas x

  • Offline in reply to Daisy71

    Hi Daisy,

    that is amazing news, so happy for you both

    x

  • Offline in reply to Daisy71

    Wow Daisy that is absolutely brilliant news! So pleased for you both! So good to hear! This will inspire so many others  on here.

    Yes celebrate in style. 
     

    keeping the faith

    Milly

     

     

  • Offline in reply to Daisy71

    OMG OMG OMG, 

    DAISY71!!!!!!
    OMG- oh I'll stop now and try and stop the OMG.

    That is such fantastic news, I am actually sitting here, all smiling and not quite sure what to do with myself or say.

    What you guys must be feeling is probably beyond words. You are probably looking at each other and thinking ' did we hear the doc correctly', is it true etc etc.

    Isn't it weird how we have all never met , but such news from us lot is air punchingly good.

    I have fences that needs some work- if he's 'bored' like ((((::::

    May Shepard's pie remain OFF the menu for many years to come ((::

    we all keeping the faith

    All my very best wishes

    Hilts

  • Offline in reply to Milly58

    Hi Milly

    That's great news on the eating - it's been a huge postive for me too looking at the number of issues that some people seem to acquire post op.

    Just this dammed effusion to sort out - I think your Fffs deserved a few more f's, but again it's good that your consultant is not resting and pushing your case.

    Keeping the ffffaith

    bfg

  • Offline in reply to Daisy71

    Hi Daisy, that's fantastic news, it's so good to hear positive outcomes...good luck

    Lee 

  • Offline in reply to Daisy71

    Hi Daisy

    Just keeping the trend going - that's ffffantastic and brilliant news.  

    I'll definitely be celebrating with you this weekend once I stop all my round of meds this week.

    cheers

    bfg

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