osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

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  • Hi Rayb

    just been through this had FLOT april and may operation in june  its a long journey but stick witk it.

    It may all sound a bit frightening at first i would recommend you read up on your treatment the FLOT is bearable and the operation is not really a worry although it is a major operation i will say that at no point in my journey have i really suffered any major pain and i am 90  percent recovered as of today if i can offer you any help or advice please contact me as it is always good to hear from someone who has been through this procedure recently , our NHS will take care of you by far the best care you can get ,trust me.

  • This is soooo encouraging to hear - NHS fantastic - every confidence. How are you doing now dooggreg?

  • Hi Andi

    nice to hear from you , i am just over a year ahead of where you are now and have continually posted throughout the FLOT , the surgery  and recovery phases in an effort to offer some sort of reassurance to others and a bit of non clinical guidance , although i am 95% recovered i reckon on it taking 2 years to reach an acceptable level of normality , so be patient you are not in a race , this time next year you will be writing this advice to someone in the same position , believe it or not i have found the whole thing to be a very uplifting experience and hope it's the same for you and everyone else on here , got any  questions ? no matter how trivial just ask ,there is a wealth of non clinical knowledge amongst those who post on here , meanwhile  stay strong and take care of yourself

    Regards

    Douglas

  • Thank you - so good to share experiences- especially positive ones - will keep you informed of my progress xx

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