I have just had my first FLOT chemo - on Friday - all OK so far. How are you all doing post op?? Be very interested to know how you all are 

Hi Andi1947,

As everyone says welcome to the club no one wants to join. However as the patient's wife everyone on here has really helped me and in turn my husband,as I've been able to pas on relevant pieces of advice/info.

I didn't join in with the chat until we knew what path he was on. The op itself was text book and he made superb progress. He has had some set backs but the standard of care he has received has been outstanding to say the least. His eating is pretty good especially considering all that's happened.

Try not to read too much on google as it's often out of date and the figures involve people of all ages and conditions . NHS ones can be helpful but everyone is unique and I have to say my husband managed the FLOT well. Most on here seem to have coped with the second round pretty well too. 

My husband found drinking plenty of water helped and he took two small flasks upstairs at night. I bought some chewy ginger for sickness. Also peppermint t tea and lemon and ginger tea as well. He used a heat pad on his throat as the oxyaliplatin affected him slightly.From what we learnt everyone reacts differently and that's what makes it hard. I think we all want answers and facts but it's very complex.

I wish you all the best.

Keeping the faith 

Milly

Hi Andi1947,

As everyone says welcome to the club no one wants to join. However as the patient's wife everyone on here has really helped me and in turn my husband,as I've been able to pas on relevant pieces of advice/info.

I didn't join in with the chat until we knew what path he was on. The op itself was text book and he made superb progress. He has had some set backs but the standard of care he has received has been outstanding to say the least. His eating is pretty good especially considering all that's happened.

Try not to read too much on google as it's often out of date and the figures involve people of all ages and conditions . NHS ones can be helpful but everyone is unique and I have to say my husband managed the FLOT well. Most on here seem to have coped with the second round pretty well too. 

My husband found drinking plenty of water helped and he took two small flasks upstairs at night. I bought some chewy ginger for sickness. Also peppermint t tea and lemon and ginger tea as well. He used a heat pad on his throat as the oxyaliplatin affected him slightly.From what we learnt everyone reacts differently and that's what makes it hard. I think we all want answers and facts but it's very complex.

I wish you all the best.

Keeping the faith 

Milly

Hi milly58

Thank you so much for your reply - so good to hear such positive thoughts. I'm very early in the journey and was worried about forums but this one is so good and already made me feel better about what us to come. You are all very brave and it is so good to hear your comments. Hope my path will be good - sure it will 

Andi xx