I have just had my first FLOT chemo - on Friday - all OK so far. How are you all doing post op?? Be very interested to know how you all are 

I have just had my first FLOT chemo - on Friday - all OK so far. How are you all doing post op?? Be very interested to know how you all are 

Aha Andi, 

Are you a newbie? If so welcome to the club- I'll respond in full later as running off to town.

we all on here 'world experts' at 'living the dream' and know FLOT extremely well

i'll do better later

 est wishes

HILTS

Hi Andi1947

Welcome to the club that nobody wants to belong too.

It's a bit of a long read, but if you haven't already - take a gander through this thread as there are a number of us at various stages. Many of us post op, and some like yourself who have just started the journey. 

I'm 15 weeks post op and have just had my final flot cycle.

Personally - I'm doing a lot better than I thought I would. The medical team are fantastic, and they do give all the information that you need both positive and potentially negative effects of the operation to enable an informed decision. 

Things have changed and are changing in terms of what you can and can't eat post op, and how frequently you eat. It's an evolving situation - and where I can now eat practically all the food I used to eat in moderation,  I'm still building up to the 4 pints of beer challenge. 

Cheers

Bfg

Thank you all - bit of a scary road but so good to share with others at different stages. You all seem very positive- will join you. Hope you soon build up to the 4 pints BFG!! Appreciate your support - very early for me   Take care everyone xx

Very much a newbie Hilts - first FLOT last Friday - feeling good - long May it last xx

Hi Andi1947,

As everyone says welcome to the club no one wants to join. However as the patient's wife everyone on here has really helped me and in turn my husband,as I've been able to pas on relevant pieces of advice/info.

I didn't join in with the chat until we knew what path he was on. The op itself was text book and he made superb progress. He has had some set backs but the standard of care he has received has been outstanding to say the least. His eating is pretty good especially considering all that's happened.

Try not to read too much on google as it's often out of date and the figures involve people of all ages and conditions . NHS ones can be helpful but everyone is unique and I have to say my husband managed the FLOT well. Most on here seem to have coped with the second round pretty well too. 

My husband found drinking plenty of water helped and he took two small flasks upstairs at night. I bought some chewy ginger for sickness. Also peppermint t tea and lemon and ginger tea as well. He used a heat pad on his throat as the oxyaliplatin affected him slightly.From what we learnt everyone reacts differently and that's what makes it hard. I think we all want answers and facts but it's very complex.

I wish you all the best.

Keeping the faith 

Milly

Hi milly58

Thank you so much for your reply - so good to hear such positive thoughts. I'm very early in the journey and was worried about forums but this one is so good and already made me feel better about what us to come. You are all very brave and it is so good to hear your comments. Hope my path will be good - sure it will 

Andi xx