Hi lovely

Hopefully just to put your mind at rest. I had my letter come back as HPV+ & Severe Dyskaryosis. Had my colposcopy & lletz on the same day (2 weeks after letter came). Results came back from my lletz & it was actually only cin 1! Test of cure smear 6 months later came back as hpv- too :)

I had it explained to me like this - no system is perfect! Sometimes false or worse positives can happen. Something else could have gotten onto the slide & caused a mis reading. If they are in doubt, they grade up

They report cervical cancer & cervical canal changes differently on letters

I would put money on you being totally fine & nothing to worry about! X

Hi all, I have been going out of my mind in the same position, so thank you for sharing your experiences, it has really helped.

I had high grade severe results a few weeks ago, having never had abnormal results. I went for my colposcopy expecting to have the LLETZ under local anaesthetic but was told it was a large area and I also had some lesions so it had to be done under general anaesthetic. This worried me even more and had it done 2 weeks later. That was middle of August and just found out today that there is a discrepancy, the biopsy and lesions were all low grade, not high grade as the smear suggested. This is going to be mentioned in their next meeting in a few weeks' time so I guess no further treatment is needed, the letter does not mention any further treatment. Although there was a discrepancy, I am feeling relieved that it is all done and is low grade.

Hello lovely

And your post has also made me feel better again so thank you for sharing! It's just one of the things that can happen unfortunately. But i suppose it's best to be overtreated & ok than undertreated & have potential future risks

My cervix does however feel very different now. Even 9 months after, it feels bumpy. But again just one of those things i suppose

I'd love to know what your MDT meeting results are when you get them? 

My discrepancy went to MDT & nothing changed. But was still good to know they investigated it

x

Aww thank you, I wasn't expecting any replies, just wanted to share my experience, it seems a lot of women are in the same boat, worrying after getting abnormal results.

I totally agree, I don't think my treatment would have been any different, I am just relieved that although there is a discrepancy then hopefully no further treatment is needed.

Good that your results were investigated and no further treatment was needed.

Yes I will definitely let you know the results of their meeting, it will be in a few weeks' time.

Thank you, take care x

Thank you for all of your posts.
 

I have received the same letter just today. I called the cervical screening team and they informed me that they are booking in people referred from April at the moment . But then she took my details, passed me straight onto another lady on the team and she said that they have booked me an appointment for next week, so now my head is spinning! Must be urgent if they have booked me an appointment within a week of me being referred, or is this normal?!? 
 

I lost my dad to cancer last year and have 2 young boys, I'm now thinking the worst and can't stop thinking about it.

Hi there

Please try not to worry about the speed of your appointment, and consider that it’s a good thing to get an appointment quickly-perhaps they had a cancellation next week and that freed an appointment space up.

High grade dyskariosis is NOT cancer-the smear has identified that you have precancerous cells, and It’s likely with high grade you will need to have them removed, but this is a simple procedure where the results are sent for biopsy to confirm that all the abnormal cells have been removed, and you would return for a smear in six months. 

Please don’t spend time thinking the worst and contemplating cancer: the whole point of the cervical screening programme is to catch abnormal cells early, long before they would ever turn to cancer, and this is what it has done it your case. All the best for your appointment. 

Thank you very much for your response. It is very easy to jump to the worst case scenario but this is reassuring to hear. X

Just wanted to share my story also. Came across this post when Googling the two above things hoping to get others experience.

2 years ago I had my first abnormal smear, granted I was overdue one for a few years >< Now I wish I had attended!

I went in for a colposcopy and between my smear and the colposcopy I had fallen pregnant with a planned pregnancy. They checked and saw I had cin2, and asked if they could do a biopsy but I declined due to being pregnant. They arranged for me to come in a few weeks after I had given birth for a biopsy. Fast forward to that date, had my biopsy which....I couldnt feel a thing, im guessing as I had just given birth and numb cervix etc. It came back high grade & high risk HPV so I was booked in to have a LLETZ 2 weeks later. 

6 month usual checkup came around, abnormal cells had come back. They arranged for me to have a cold coagulation as they only showed mild abnormalities. Still worried me as, I thought the LLETZ had removed all abnormal cells. I went back for this appointment, I had another consultant, who had a chat with me, said I also had cervical stenosis, and if I wished to have anymore children, to which I responded yes. He said that another treatment would worsen the stenosis (narrowing of the cervix) and as my cells were just mild, I could put off my treatment for another 6 months which I did.

So within those few months, I was desperately trying for a baby, worrying that if the cells worsened in those months, it would rule out me completing my family. We were successful =) Went to my 6 month checkup again, where another smear was taken and colposcopy done. Consultant said at the time that it looked ok, but obviously couldnt do much due to me being pregnant.
Went away thinking yay, its ok! Somehow...its gotten better!

Then.....2 weeks after (well now) I have received a letter from the hopsital saying that the lab results came back showing high grade dyskaryosis and high risk HPV. So this is now TWO pregnancies where I have had low grade at the start, and then several months into my pregnancy it has sped up to a cin2 and cin3 (with current one) which is obviously very worrying.  They are also changing me from 6 month checkups to monthly checkups as of next week.

All I can think is the HPV is causing these abnormal cells to keep reappearing, and somehow pregnant hormones are speeding them up? I dont know.... Everyone keeps telling me not to worry but thats a little hard.

Thanks so much for this! I just got the exact same letter HPV positive and severe dyskariosis. Going to have my Colposcopy Monday PM and it is quite daunting esp when you see symptoms. how was the colposcopy? And what can they find during the colposcopy? And how long does it take for biopsy results? :) 

I got letter say I have severe dyskaryosis from my smear test 

so I got hospital appt in 2 week time I am really scared I have 3 kids of mine 

I'm too young I don't know how it's caught