Smear: HPV positive with High Grade (severe) Dyskaryosis

After days of trawling through the internet after receiving a letter less than a week after my original smear (already having forgotten that I'd be getting my results via the post - thinking I was opening another bill) it stated that the cells found were HPV positive and that the cells found were High Grade (Severe) dyskaryosis and that if I'd like to discus this with my GP I should take the letter with me. 
I also received a leaflet detailing the Coloscopy procedure and what would happen during my appointment. 
I googled a lot - firstly how I'd caught HPV having already had the 3 lots of vaccination over 10 years ago... later than what they do them now as it had just become the thing... 

secondly I googled High Grade (severe) dyskaryosis... as High Grade and Severe in the same sentence on an official letter made me rather concerned...  I fell out with google as it was apparent that I wasn't going to find any clarity until I'd either spoken to the GP or attended the Coloscopy - which was the following week - less than 7 days after I'd received the letter. I called the GP for a telephone appointment as I couldn't justify a reason to attend the GP for a conversation. The GP rang me back and stated he didn't have much knowledge on the subject but basically told me what I'd already read... he told me what would happen at the Coloscopy and that I'd receive treatment if I agreed when at the appointment if it was needed... so I was no more knowledgeable than prior to our conversation. So I thanked him and waited it out... not nice but it soon came around. I talked and talked and talked about it - I became nauseous and nervous but talking really helped. I had a right to be concerned but no reason to worry. 
I attended the Coloscopy where she found a completely healthy cervix - no cells to be seen on the outside... NONE... having seen the images on google of a cervix with cells and looking at the screen with my Cervix I was reassured that no cells were present on the outside. 
I was given the LLETS treatment as a precaution from inside my cervix as she had explained that due to me having never given birth to a baby my cervix wouldn't allow her to get in much to see what was inside (where the cells may be coming from).

I was rather reluctant at first to have the treatment as all  I could see was a healthy cervix and she had confirmed it looked that way from the outside too. To the point she even checked all my details again to ensure she had the correct results in front of her. no sex no swimming and no tampax for 4 weeks she told me... (half the reason I didn't want it done ) 

I'm not going to lie - three injections into your cervix is painful (or it was for me!) the treatment was over and done with before I knew it and I had the oppertunity to inspect what she had removed to be sent off when she'd placed it into a pot!) I have quite a lot of cramping - as if I'm about to experience the worst period ever - and I presume it's not all over yet. But the experience of it is and I'm grateful that it's done with. 
 

A maximum of 4 weeks to wait to see my results but I'm confident in myself that I'm fine and it's all precautionary. Positivity and happyness is the best cure - and of anything was to come you'd need positive energy to survive. It might not work for everyone but it works for me. 
 

I just thought I'd share as I had read some right terrorising stories and thought mine was a positive one - to give you some hope that everything is okay in the end

EDIT required... as I know it's a nightmare not knowing... everything was fine and they've said I can continue with smears as usual. I had to have one after 6 months - which came back normal and now I'm back to every three years. They have advised that if I experience any symptoms to see my GP as they would usually reccomend anyway. 
 

hope this helps someone in that situation who is worried - it's not always a bad outcome. 
 

stay safe 

 

x 


 

Parents
  • Just wanted to share my story also. Came across this post when Googling the two above things hoping to get others experience.

    2 years ago I had my first abnormal smear, granted I was overdue one for a few years >< Now I wish I had attended!

    I went in for a colposcopy and between my smear and the colposcopy I had fallen pregnant with a planned pregnancy. They checked and saw I had cin2, and asked if they could do a biopsy but I declined due to being pregnant. They arranged for me to come in a few weeks after I had given birth for a biopsy. Fast forward to that date, had my biopsy which....I couldnt feel a thing, im guessing as I had just given birth and numb cervix etc. It came back high grade & high risk HPV so I was booked in to have a LLETZ 2 weeks later. 

    6 month usual checkup came around, abnormal cells had come back. They arranged for me to have a cold coagulation as they only showed mild abnormalities. Still worried me as, I thought the LLETZ had removed all abnormal cells. I went back for this appointment, I had another consultant, who had a chat with me, said I also had cervical stenosis, and if I wished to have anymore children, to which I responded yes. He said that another treatment would worsen the stenosis (narrowing of the cervix) and as my cells were just mild, I could put off my treatment for another 6 months which I did.

    So within those few months, I was desperately trying for a baby, worrying that if the cells worsened in those months, it would rule out me completing my family. We were successful =) Went to my 6 month checkup again, where another smear was taken and colposcopy done. Consultant said at the time that it looked ok, but obviously couldnt do much due to me being pregnant.
    Went away thinking yay, its ok! Somehow...its gotten better!

    Then.....2 weeks after (well now) I have received a letter from the hopsital saying that the lab results came back showing high grade dyskaryosis and high risk HPV. So this is now TWO pregnancies where I have had low grade at the start, and then several months into my pregnancy it has sped up to a cin2 and cin3 (with current one) which is obviously very worrying.  They are also changing me from 6 month checkups to monthly checkups as of next week.

    All I can think is the HPV is causing these abnormal cells to keep reappearing, and somehow pregnant hormones are speeding them up? I dont know.... Everyone keeps telling me not to worry but thats a little hard.

  • Thanks so much for this! I just got the exact same letter HPV positive and severe dyskariosis. Going to have my Colposcopy Monday PM and it is quite daunting esp when you see symptoms. how was the colposcopy? And what can they find during the colposcopy? And how long does it take for biopsy results? :) 

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  • Thanks so much for this! I just got the exact same letter HPV positive and severe dyskariosis. Going to have my Colposcopy Monday PM and it is quite daunting esp when you see symptoms. how was the colposcopy? And what can they find during the colposcopy? And how long does it take for biopsy results? :) 

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