Smear: HPV positive with High Grade (severe) Dyskaryosis

After days of trawling through the internet after receiving a letter less than a week after my original smear (already having forgotten that I'd be getting my results via the post - thinking I was opening another bill) it stated that the cells found were HPV positive and that the cells found were High Grade (Severe) dyskaryosis and that if I'd like to discus this with my GP I should take the letter with me. 
I also received a leaflet detailing the Coloscopy procedure and what would happen during my appointment. 
I googled a lot - firstly how I'd caught HPV having already had the 3 lots of vaccination over 10 years ago... later than what they do them now as it had just become the thing... 

secondly I googled High Grade (severe) dyskaryosis... as High Grade and Severe in the same sentence on an official letter made me rather concerned...  I fell out with google as it was apparent that I wasn't going to find any clarity until I'd either spoken to the GP or attended the Coloscopy - which was the following week - less than 7 days after I'd received the letter. I called the GP for a telephone appointment as I couldn't justify a reason to attend the GP for a conversation. The GP rang me back and stated he didn't have much knowledge on the subject but basically told me what I'd already read... he told me what would happen at the Coloscopy and that I'd receive treatment if I agreed when at the appointment if it was needed... so I was no more knowledgeable than prior to our conversation. So I thanked him and waited it out... not nice but it soon came around. I talked and talked and talked about it - I became nauseous and nervous but talking really helped. I had a right to be concerned but no reason to worry. 
I attended the Coloscopy where she found a completely healthy cervix - no cells to be seen on the outside... NONE... having seen the images on google of a cervix with cells and looking at the screen with my Cervix I was reassured that no cells were present on the outside. 
I was given the LLETS treatment as a precaution from inside my cervix as she had explained that due to me having never given birth to a baby my cervix wouldn't allow her to get in much to see what was inside (where the cells may be coming from).

I was rather reluctant at first to have the treatment as all  I could see was a healthy cervix and she had confirmed it looked that way from the outside too. To the point she even checked all my details again to ensure she had the correct results in front of her. no sex no swimming and no tampax for 4 weeks she told me... (half the reason I didn't want it done ) 

I'm not going to lie - three injections into your cervix is painful (or it was for me!) the treatment was over and done with before I knew it and I had the oppertunity to inspect what she had removed to be sent off when she'd placed it into a pot!) I have quite a lot of cramping - as if I'm about to experience the worst period ever - and I presume it's not all over yet. But the experience of it is and I'm grateful that it's done with. 
 

A maximum of 4 weeks to wait to see my results but I'm confident in myself that I'm fine and it's all precautionary. Positivity and happyness is the best cure - and of anything was to come you'd need positive energy to survive. It might not work for everyone but it works for me. 
 

I just thought I'd share as I had read some right terrorising stories and thought mine was a positive one - to give you some hope that everything is okay in the end

EDIT required... as I know it's a nightmare not knowing... everything was fine and they've said I can continue with smears as usual. I had to have one after 6 months - which came back normal and now I'm back to every three years. They have advised that if I experience any symptoms to see my GP as they would usually reccomend anyway. 
 

hope this helps someone in that situation who is worried - it's not always a bad outcome. 
 

stay safe 

 

x 


 

Parents
  • Hi there - I am in the same situation you were in (high grade/severe + HPV), but no abnormal cells seen at colposcopy (assumed to be type 3 transformation zone).

    I'm struggling to find many women in this situation and wanted to ask how your results were? Keeping everything crossed.

    Thanks so much. X

  • Hi lovely

    Hopefully just to put your mind at rest. I had my letter come back as HPV+ & Severe Dyskaryosis. Had my colposcopy & lletz on the same day (2 weeks after letter came). Results came back from my lletz & it was actually only cin 1! Test of cure smear 6 months later came back as hpv- too :)

     

    I had it explained to me like this - no system is perfect! Sometimes false or worse positives can happen. Something else could have gotten onto the slide & caused a mis reading. If they are in doubt, they grade up

    They report cervical cancer & cervical canal changes differently on letters

    I would put money on you being totally fine & nothing to worry about! X

Reply
  • Hi lovely

    Hopefully just to put your mind at rest. I had my letter come back as HPV+ & Severe Dyskaryosis. Had my colposcopy & lletz on the same day (2 weeks after letter came). Results came back from my lletz & it was actually only cin 1! Test of cure smear 6 months later came back as hpv- too :)

     

    I had it explained to me like this - no system is perfect! Sometimes false or worse positives can happen. Something else could have gotten onto the slide & caused a mis reading. If they are in doubt, they grade up

    They report cervical cancer & cervical canal changes differently on letters

    I would put money on you being totally fine & nothing to worry about! X

Children
  • Hi all, I have been going out of my mind in the same position, so thank you for sharing your experiences, it has really helped.

    I had high grade severe results a few weeks ago, having never had abnormal results. I went for my colposcopy expecting to have the LLETZ under local anaesthetic but was told it was a large area and I also had some lesions so it had to be done under general anaesthetic. This worried me even more and had it done 2 weeks later. That was middle of August and just found out today that there is a discrepancy, the biopsy and lesions were all low grade, not high grade as the smear suggested. This is going to be mentioned in their next meeting in a few weeks' time so I guess no further treatment is needed, the letter does not mention any further treatment. Although there was a discrepancy, I am feeling relieved that it is all done and is low grade.

  • Hello lovely

    And your post has also made me feel better again so thank you for sharing! It's just one of the things that can happen unfortunately. But i suppose it's best to be overtreated & ok than undertreated & have potential future risks

    My cervix does however feel very different now. Even 9 months after, it feels bumpy. But again just one of those things i suppose

    I'd love to know what your MDT meeting results are when you get them? 

    My discrepancy went to MDT & nothing changed. But was still good to know they investigated it

    x

  • Aww thank you, I wasn't expecting any replies, just wanted to share my experience, it seems a lot of women are in the same boat, worrying after getting abnormal results.

    I totally agree, I don't think my treatment would have been any different, I am just relieved that although there is a discrepancy then hopefully no further treatment is needed.

    Good that your results were investigated and no further treatment was needed.

    Yes I will definitely let you know the results of their meeting, it will be in a few weeks' time.

    Thank you, take care x