Operation in a few hours to remove lower left lobe of lung

writing this whilst unable to sleep, not surprising as I have my operation in a few hours to remove the lower left lobe of my lung

  • Hi Ruth,

    I felt better today and the cough was better. I did some jobs like wrapping a few presents( I’ve only bought a few anyway because this whole thing took over)  and I even went out for a (short ) walk! As you say,  everyone is so lovely. My house is full of flowers too! 

    I was told that I can’t drive for 6 weeks after the operation but nothing about informing the DVLA. I’ll see what I can find out. Hope you are having a great time at your family gathering! 

    Joy x

  • Hi Vicky,

    Wishing you all the best for tomorrow. You will be fine and I will be thinking of you. A weird way to spend Christmas,  but I hope you have a speedy recovery and get spoiled rotten!

    In due course, let us know how it went.

    Joy x

  • Hi Joy

     

    ooeration cancelled due to no bed available. Pressure from a& e apparently. Will now have to wait again.

    so  xmas at home.

    vicky

  • Vicky,

    Upset to hear this. My thoughts are with you

    x

  • Hi Joy, I've been thinking about you, how did your appointments go today and Christmas Eve? 
    Ruth x

  • Hi Vicky, sorry to read that your surgery was cancelled and I hope you get another date soon.

    Ruth x

  • Hi Ruth,

    I found out on Christmas Eve that my cancer is a very rare and very aggressive form. There is hardly any data on it and no established treatment. Worse still, it was at stage 4. This is due to the fact that a spec was found on the surface of my lung. I think it was T4N0M1 but it was a bit of a blur and the surgeon didn’t give me anything in writing. I remembered the name of the cancer and of course looked it up even though she told me not to.

    Hmmmm! As you can imagine Christmas was a massive struggle. I was basically in a state of fear until I woke in the early hours of Boxing Day and talked myself into a better frame of mind where I have more or less managed to remain so far.

    I am basically thinking that statistics are less meaningful when there are only a small number of reported cases, that I had a pneumonectomy and there was no evidence of cancer outside my lung, that I have been recovering well from the operation and am “young” and fit, that I will have any and all treatment they can give me,  that a few people have survived 5 years and so there’s nothing to say I won’t be one of them.

    Thats the positive side and I’m batting back the negatives!

    Yesterday the stitches removal went well and I told the nurse about my situation and got a very nice call from the GP. It’s a new surgery for me because I moved house recentl,  so it’s nice to feel contact has been made.

    We are going to hear from the oncologist in the next few days and I think they will start chemo as soon as possible, but of course I’m still recovering from major surgery so that might slow things down.

    So that’s me. How are you? I hope you had a great Christmas ! What are you doing for New Year? I always have a quiet one anyway and my sister and her husband are coming to stay so I’m really looking forward to that. 

    I hope you get some good news on 3rd Jan. Everything crossed for you.

    Joy xx

     

     

  • Hi Joy, I'm so sorry to read this, you must be devastated. It's such a scary time; I know I don't know you but you sound a positive, strong and pragmatic person and that you are preparing yourself for your treatment and will deal with it as positively as you can. I hope you hear from the oncologist soon. You are young and fit so definitely have that on your side, as well as a supportive family.

    I feel I've been in a bit of a 'bubble' over Christmas time (not the champagne kind sadly), and had kind of blocked next steps out temporarily. I'm dreading my appt on the 3rd. I too feel I'm recovering well from the surgery; I struggle a bit first thing getting out of bed but once I taken some painkillers I'm ok although I've been quite tired and my bowels still aren't back to normal! We're heading back to Surrey today, in fact I'm in the car now and that's a bit more comfortable too. We are just planning a quiet NYE as well, probably just the two of us. 

    That's good that your GP has been in touch. Have they suggested any local support groups? I've got a follow up appt on Monday with the nurse to check my drain wound.

    I sent you a 'friends request', not quite sure how this site works and if it allows direct conversations?

    Please do keep in touch and let me know what treatment plan the oncologist decides, and I'm here if you want to chat/vent.

    Ruth x