An introduction from an oesophagectomy survivor

Hello

I thought I should join the forum after having oesophageal cancer last year. After a gastrectomy and a biopsy I was diagnosed with oesophageal cancer on 8th January 2018.

I had a feeding tube fitted and this was followed by 8 weeks of intense chemotherapy. I had an oesophagectomy on 8th June then post op chemo over a further 8 weeks. It's been difficult adjusting to my new way of living but with the help of my wife, I'm getting there.

If anyone wants any advice or has any question about oesophageal cancer, please feel free to post or contact me. The main thing I have learned from this is that the leaflets don't tell the whole story and there is a lot to learn about post op.

So I'll say cheerio for now but I'll pop in now and again and see how everyone is doing.

cheers

Otto (Not my real name )

Parents
  • Hi Otto

    I hope you still cone on here! My husband would like to chat to you. He had a oesophagectomy 5 weeks ago.

    Thank you

    Kathymay

  • Hi Kathymay, 

    I don't know how I was notified of these post as they are 'older', but here I am. It must be karma or telepathy. I noticed your post is newer than the rest. All I can say is welcome to the Oesophageal club!!!
     

    My husband is the 'victim'. Shock out of the blue diagnosis late July last year. Aged 56. Gone through the whole pre op chemo, op, post op chemo, finished last Tuesday. Yipppppppeeeeee (:. Been told he is 'visable/active disease free' .......now the recovery begins I guess.

    One thing is for sure, we seem to be an ever expanding club. I started here last July and there must be at least 8-10 (all blokes) that are all at the same stage in treatment as the old man. Now I find this board, so that doubles it. I keep telling my husband that he is a 'common as muck' (:

    Us more recent 'victims' have another thread running. Go to my name, followed discussions, rayb, oesophageal cancer diagnosis. It would be great if we all posted on the same board. Ray is probably going to kill me for expanding/hijacking his threat......probably not as I think for all of us, it is good to know we are certainly not alone (:

    Also , hello Georgie. Great to see another veteran, out the other side. That is really really heartwarming to see.(:

    take care 

    Hilts

Reply
  • Hi Kathymay, 

    I don't know how I was notified of these post as they are 'older', but here I am. It must be karma or telepathy. I noticed your post is newer than the rest. All I can say is welcome to the Oesophageal club!!!
     

    My husband is the 'victim'. Shock out of the blue diagnosis late July last year. Aged 56. Gone through the whole pre op chemo, op, post op chemo, finished last Tuesday. Yipppppppeeeeee (:. Been told he is 'visable/active disease free' .......now the recovery begins I guess.

    One thing is for sure, we seem to be an ever expanding club. I started here last July and there must be at least 8-10 (all blokes) that are all at the same stage in treatment as the old man. Now I find this board, so that doubles it. I keep telling my husband that he is a 'common as muck' (:

    Us more recent 'victims' have another thread running. Go to my name, followed discussions, rayb, oesophageal cancer diagnosis. It would be great if we all posted on the same board. Ray is probably going to kill me for expanding/hijacking his threat......probably not as I think for all of us, it is good to know we are certainly not alone (:

    Also , hello Georgie. Great to see another veteran, out the other side. That is really really heartwarming to see.(:

    take care 

    Hilts

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