An introduction from an oesophagectomy survivor

Hello

I thought I should join the forum after having oesophageal cancer last year. After a gastrectomy and a biopsy I was diagnosed with oesophageal cancer on 8th January 2018.

I had a feeding tube fitted and this was followed by 8 weeks of intense chemotherapy. I had an oesophagectomy on 8th June then post op chemo over a further 8 weeks. It's been difficult adjusting to my new way of living but with the help of my wife, I'm getting there.

If anyone wants any advice or has any question about oesophageal cancer, please feel free to post or contact me. The main thing I have learned from this is that the leaflets don't tell the whole story and there is a lot to learn about post op.

So I'll say cheerio for now but I'll pop in now and again and see how everyone is doing.

cheers

Otto (Not my real name )

Parents Reply
  • Hi, he is having problems with his appetite in that he never feels hungry.....I do encourage him to eat and he does but he is worried that he is not eating enough. He has a feeding tube at night giving him approx 12,000 cals. Any ideas how  he can increase his  appetite? He also has a lot of pain around his rib, on the side of his scar, is this normal? He also seems very down, although his prognosis is good.

    How are you getting on?

Children
  • Hi

    Glad to hear he's got through the op. The hard work does start now I'm afraid. 
    Lack of appetite is one of the side effects of the op. Durin* the op a nerve gets cut and it's this nerve which drives the hunger message to your brain. So what did and what do I do; try and get him into a routine where he has a very small snack/ meal every 2 - 3 hours. Pick something that he has been able to eat easily. Don't put pressure on him to eat but coax him into to it. It will get better but never be the same. I have either a drink or a small snack meat ever hour to hour and a half. I never feel hungry and I often joke with my wife and say "Am I hungry now?".

    It took me 6 months to get to some sort of normality as I kept eating the wrong things and getting bad dumping syndrome. So watch out for sugar, doughy bread and hidden sugars.

    He is on a difficult journey but tell him from me it will get easier and he will adapt, it just takes time.

    If you want anything else from me, please feel free to post a message.