An introduction from an oesophagectomy survivor

Hello

I thought I should join the forum after having oesophageal cancer last year. After a gastrectomy and a biopsy I was diagnosed with oesophageal cancer on 8th January 2018.

I had a feeding tube fitted and this was followed by 8 weeks of intense chemotherapy. I had an oesophagectomy on 8th June then post op chemo over a further 8 weeks. It's been difficult adjusting to my new way of living but with the help of my wife, I'm getting there.

If anyone wants any advice or has any question about oesophageal cancer, please feel free to post or contact me. The main thing I have learned from this is that the leaflets don't tell the whole story and there is a lot to learn about post op.

So I'll say cheerio for now but I'll pop in now and again and see how everyone is doing.

cheers

Otto (Not my real name )

Parents
  • Hello (not your real name ) Otto (:.

    Good to hear from a 'survivor'. 
    There is a 'club' going on , on here, the Oesophageal cancer club.  There are loads of us, various tumour stages and various treatment stages. With 1-2 'veterans. Now I find there are a lot lot more!

    If you go into my 'hilts' and followed conversations it is RayB / oesophageal cancer diagnosis we are on there, 

    lit is so so good to have someone who is 'post'. So many and so much on line is frankly a horror story.

    It is my 56 yr old husband with OC. Totally out of the blue , like so many current travellers,late July last year. Given a C2 adeno. He had his preop. FLOT, Oesophagectomy (key hole) and last Tuesday finished his 4 post op FLOTS yipeeeeee. He/we have been told currently'active disease free' finally histology T1b n-0, MO. MACC 2/5. Good clear margins. I thought I'd have to contact Bletchley Park to translate that, but with help on here ,managed to work it out.

    we are kinda looking at each other thinking 'what just happened' ,surreal doesn't come close.

    He is back on full grub since week 8..... see my posts......frankly I despair (:

    As for the NHS- well, I know some people are let down, but I cannot even begin to describe how utterly amazing they have been,once you get through GP that is..... talk about bish, bash , bosh. (: . Endoscopy on 29th July; CT scan next day (quiet because of Covid) we were given an appointment for MDT for 'official diagnosis' and treatment plan for 2nd August, but we deferred to the 8th and decided to go on our planned holiday- I mean what else can you do. PET scan a week later. MDT decided to go for curative and started treatment 3 weeks later. Now we are done, i always say 'for now' as don't want to tempt the old fate.

    So come over to the club.

    Great to hear from a 'success' (:

    best wishes

    Hilts - maybe or may not be my real name (: (:

     

     

Reply
  • Hello (not your real name ) Otto (:.

    Good to hear from a 'survivor'. 
    There is a 'club' going on , on here, the Oesophageal cancer club.  There are loads of us, various tumour stages and various treatment stages. With 1-2 'veterans. Now I find there are a lot lot more!

    If you go into my 'hilts' and followed conversations it is RayB / oesophageal cancer diagnosis we are on there, 

    lit is so so good to have someone who is 'post'. So many and so much on line is frankly a horror story.

    It is my 56 yr old husband with OC. Totally out of the blue , like so many current travellers,late July last year. Given a C2 adeno. He had his preop. FLOT, Oesophagectomy (key hole) and last Tuesday finished his 4 post op FLOTS yipeeeeee. He/we have been told currently'active disease free' finally histology T1b n-0, MO. MACC 2/5. Good clear margins. I thought I'd have to contact Bletchley Park to translate that, but with help on here ,managed to work it out.

    we are kinda looking at each other thinking 'what just happened' ,surreal doesn't come close.

    He is back on full grub since week 8..... see my posts......frankly I despair (:

    As for the NHS- well, I know some people are let down, but I cannot even begin to describe how utterly amazing they have been,once you get through GP that is..... talk about bish, bash , bosh. (: . Endoscopy on 29th July; CT scan next day (quiet because of Covid) we were given an appointment for MDT for 'official diagnosis' and treatment plan for 2nd August, but we deferred to the 8th and decided to go on our planned holiday- I mean what else can you do. PET scan a week later. MDT decided to go for curative and started treatment 3 weeks later. Now we are done, i always say 'for now' as don't want to tempt the old fate.

    So come over to the club.

    Great to hear from a 'success' (:

    best wishes

    Hilts - maybe or may not be my real name (: (:

     

     

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