Diagnosed breast cancer but feeling OK - am I odd?

Hello,

Initial diagnosis just RHS breast at stage 2 but grade 3 so having chemo pre surgery, 1st EC on 29th August, awaiting CT, bone scan & biopsy on LHS, results due 21st August.  Had really quick & excellent treatment compared to many plus am a stoic/daft Yorkshire lass who is ready for an adventure (although I can think of better ones!!)

Been looking at the forums more so for practical advice re what to expect re chemo, what I should be doing re diet, questions to ask the cancer team who are supporting me.

Told all family & close friends and set up a whatsapp group so they know what I am doing, so far enjoying this as it’s an opportunity for all to be entertained as well as not having to have the same bl00dy conversation over & over. Definitely decided against face book as they're not close & I know it would be filled with motivational quotes - not what I am after at all. 

Hopefully there are some other people out there who are feeling relatively positive, in the meantime am off to Edinburgh fringe this weekend to watch some very odd shows - whoop, whoop!

  • Nicnac

    Couldn't agree more, although each person deals with this stupid nonsense that is cancer in their own way, being positive is good for all involved...and also having a laugh really helps too!  I'm lucky that I am able to do both.

    I'm glad that losing your hair wasn't as challenging as you had thought it was, I actually enjoyed having it shaved off once it was clear that quite a bit of it was departing my head and as am a bloshy northener enjoy people's, often surprised, reaction when my hat is flamboyantly removed...love a good staring competition at these times, not as much fun now its growing but am relishing the heat that the small growth I now have brings.

    I also loved my introduction, as part of this cancer lark, to reflexology and think some more is in order.

    Good to hear from you and that you're doing well and hope any more treatments continue in the same vein.  

    Sam X

  • Nel

    Hi, I hope everything went well Friday and you're on the mend.  Suspect its still painful and mobility is an issue but believe me it gets easier!

    How are you finding the arm exercises, for me the "winging it" one is the worst week 1.

    Love Sam X

  • Hi Sam 

    Thanks for checking me on, well am doing well, recovering so well, managing pain with pain killers. The surgery went on well, I went in just before 10am my first question in the recovery ward was 13:10 (where am I? What time is it?) Then I slept back found myself in ward.

    I know life has changed altogether but i celebrate more than being sad knowing that hamster is gone,. I spent a night there came back home Saturday around 4pm. Same day didn't use my right side for light things, honestly it has been more than I expected, washing up dishes, light cooking (oven) .I just thank God for helping me through.one of my friends picked up my daughter for a week so I have time to rest.

    I expect another friend to take me to her home ,she says cant leave me alone and best is to be at her house,so might be away tonight. Lol scattered home lol.

    Good to hear you are doing well, and becoming easy we thank God, am sure you will go back to work soon ,as for me because is physical I cant expect to be there soon. And even when am done, want to change the job need easier one.

    You are always in my thoughts and please shake care of yourself. .

    Lol.was.a but unlucky as the drainage bottle bags were all finished so lol it's a bit... how to keep it but goodness not going anyway. 

    Muvh love & God bless

    Nelxx

  • Nel

    So glad that all went well and that you're feeling fine - as I knew it would & you would of course!!  And great that you managed to get your daughter looked after too, I do believe that these things (with lost of hard work from yourself of course!) will get worked out.

    No drain bag eh?  Well the one I was given was just a large linen bag with long straps so anything that fits that would do (handbag, shopping bag..).  Anyway hopefully it will be removed soon, mine hardly took any fluids from me once I'd left hospital and was just annoying to cart around.

    Take it easy Nel, how are you finding the exercises?

    I'm off to see surgeon & oncologist Weds for pathology results so we'll see if any hamster legs remain eh?  Fingers crossed...

    Glad your pals are taking such good care of you, you deserve it.

     

    Sam X

  • Nel

    How are you getting on?  Well I hope.

    I've had a set back as nodes biopsied were all blummin cancerous!  So more surgery planned for 12th March to remove them (an ANC). Not all together happy but hey ho...

    Also am now taking Letrazole (no side effects yet I think) and will be having biphosphonate infusions every 6 months ( to counteract the impact of Letrazole on my poor bones).  Also on a trial so its all go here!

    Hope you're doing your exercises religiously and that the under arm pain is subsiding.  I've also, as you may well have, an annoying seroma under my arm to side of where boob used to be.

    Other than that all good as have lots of friends and family coming to see me so that is a welcome distraction.  Also started driving again which is a relief & actually went to the gym yesterday for lower body only, did my post surgery exercises there too - think I managed to confuse a lot of people who were lifting weights as to what I was trying to achieve...ha!

    Keep well.

    Sam X

  • Sam 

    Good to hearing from you again, I have been recovering well, went to church last sunday and dance like mad, and ofcourse getting ready for this coming sunday. Ah Sam it's so annoying seeing this still stuck in there, but Please Sam dont loose hope ,we are all in the tunnel and one day we gonna see the light.

    Hope this coming surgery will be better as it will only be lymph nodes, on 12 th of March that when am going to hear the pathology report. I dont know Sam, sometimes shaking ,sometimes happy ,sometimes I dont know, I let it to God Sam this battle is massive and we are like grasshoppers .

    Good you go for trial, ah Sam when I think about Chemotherapy ,all the side effects, where you feel like being blown away by little wind am like oh Lord have mercy,let it go for ever.

    How is cough now? I have noticed as soon as the Hickman man line was off, am all well no more cough and mucus, mmmmm Sam we have story to tell, Its been hard and long.

    Am also meeting Oncologist on 13 th March , eisshiii all I dont know.

    The wounds outside is dry but I know inside is still fresh as I can feel it, one girl helped me with Ang to and from school for whole week but this week and doing it, means no choice daily I have to go out, way it feel when out mmm, wish had a small hot water bottle just to place there for warmth.  Am just trying to eat more veg and fruits for healing, 70%of my food per day is Fruit n veg,25 protein n 5 carb.

    You are in my thought Sam the day I will hear good news will rejoice with you otherwise sleep well& peacefully.

    Regards

    Nel

  • Hi Sam

    All the best tomorrow as you go again. Remember Sam healing is a process and what takes place tomorrow is part of process. 

    By end of it all everything shall be well

    Lots of love

    Nel

  • Thanks Nel

    Am sort of looking forward to the surgery as it will get rid of (all be it temporarily) the seroma under my arm which is exceedingly annoying.  Got a pal coming down form the homeland up north later on today so will have lots of fun despite tomorrow.

    Hope your meeting Friday tells you that the surgery was a resounding success and that you can move onto radiotherapy (which I assume you'll be having , as am I).  

    How's your daughter taking all this, am sure she's strong like her mother but hope its not too horrible for her seeing her Mum go through all this process.  Hope you're still getting the help to do stuff as well, my partner, Adrian, has proved to be not too bad at housework and chopping difficult vegetables...we've found finally where his talents lie!

    Good luck all round eh?

    Sam X

  • Thanks Sam,

    Good to hear you are at least expecting tomorrow to be a good course,  you are strong person Sam which is good with this journey. 

    My daughter is ok, sometimes she just break up and start crying like last night saying "mum I love you ,don't want anything bad happen to you" and every single night as we go to bed she prays for me.

    I am still look at things in positive way, surely will come out of this and see her grown and her children. 

    First week after surgery got help but from second week am on my own with daughter. 

    I do what I can and leave the rest, I take her to school n bring her back which is one of my priorities. 

    Enjoy your day as you expect friend.

    Am also happy for Adrian, so kind person, he puts in all what he has(love and commitment).God bless him .

    I tell you, you are in my thoughts 

    Have blessed day

    Nel

  • Nel

    All went well yesterday and am feeling better though more pain than last time - maybe the former is as I knew what to expect?  Got some impressive bruises this time too!

    Am glad your daughter appears to be taking her Mum being marmalised by cancer relatively well, good on her, she's a strong one too I believe.

    Hope your meeting is going/has gone/will go well today.  Am hoping to go for a short walk later, already done one set of (very pathetic) beginners exercises to start me off again.

    Have a pal down with me till later today and Adrian is opposing round soon to do his (my!) chores and then another pal visiting tomorrow...its all go here, which is nice.  And my cats are obviously looking after me (by sleeping and demanding food!!).

    Let me know how you got on today and have a lovely weekend Nel.

    Sam X