Diagnosed breast cancer but feeling OK - am I odd?

Hello,

Initial diagnosis just RHS breast at stage 2 but grade 3 so having chemo pre surgery, 1st EC on 29th August, awaiting CT, bone scan & biopsy on LHS, results due 21st August.  Had really quick & excellent treatment compared to many plus am a stoic/daft Yorkshire lass who is ready for an adventure (although I can think of better ones!!)

Been looking at the forums more so for practical advice re what to expect re chemo, what I should be doing re diet, questions to ask the cancer team who are supporting me.

Told all family & close friends and set up a whatsapp group so they know what I am doing, so far enjoying this as it’s an opportunity for all to be entertained as well as not having to have the same bl00dy conversation over & over. Definitely decided against face book as they're not close & I know it would be filled with motivational quotes - not what I am after at all. 

Hopefully there are some other people out there who are feeling relatively positive, in the meantime am off to Edinburgh fringe this weekend to watch some very odd shows - whoop, whoop!

  • Nel

    Hope you've managed to be busy with work that I know you were trying to fit in before surgery on 21st?  Mine has now been (finally) confirmed as on 13th and the day before is a whirlwind, as I am sure yours will be...so many appointments over the last weeks.

    So sister will shortly be back in Taiwan, sad to see her going but she has animals back in Taiwan that she needs reuniting with (they're her babies!) and thinks they may get too attached to her friends who are minding the small zoo.

    My mother is coming down on Thursday to play (a rubbish) nurse, am hoping that I don't have to stay in overnight but probably won't know until the day I guess as no idea what time the op is scheduled for.

    Remind me what your surgery is - lumpectomy , full mastectomy or something else?  I had forgotten that, as well as mastectomy RHS also have a wire excision on LHS so have wires installed on LHS day before...will make showering before op a tad challenging...

    The start of next week will be cleaning the house, how the cats & my sister can generate such a need for house cleaning is beyond me.

    Any news on your niece coming over around when you have your op?  Do hope so.

    Sam X

  • Hi Sam

    So sorry didn't reply the other one, am ok yes I do go to work but not much, I had another visit at A*E after my dummy hickman like was infected , had antibiotics but didn't stay then same week they removed,  wheeey I didn't like it at all, and knowing that I didn't use ,its was very unfair to keep it but praise be to God who scheduled his own without us knowing. Am free from it.

    Ah am glad you are in on friday, you are each day in my prayer Sam as much I pray for myself to get complete healing and that operation should go well that's same manner I do for you .God is good Sam, there is a light a end of tunnel. 

    Sad sister is going back surely tell her that as soon as we get well, we will fly to Taiwan for holiday.Higs and kisses to her.

    Atleast mum is coming another good news.

    My niece just submitted visa application on friday if all goes well I expect her on 19th and.my operation is 21st. Am doing mastectomy with reconstruction after radiotherapy.  I still have hard lamp which I believe it's dead, so just want bilateral mastectomy will help. I had lymph on left side under armpit but it's not cancerous praise God,they did biopsy. 

    Journey is not easy but I thank God I stopped being in fear I live like nothing in my path.

    God bless and blessed week will check on you before day.

    Mine we had full plan, that wont stay in as soon as am ok in the evening will go home.

    Nelxxxx

  • Hi Sam

    Hope surgery went on well  I was n still with you in my spirit. Cant wait to hear that hamster is gone.

    Greeting to.mum,

    God bless you 

    Nel

  • Nel

    Hi, surgery was an absolute breeze!  The most annoying part was the wait for the theatre to be free, I didn't get in for anaesthetic stuff till 3pm and the first thing I can recall was post recovery going back to a ward to see the smiley faces of my Mother & friend at about 6.30pm (I think surgery was 2.5 hrs).

    They kept me in till about 11pm doing repeated blood pressure tests to double check I was ok, don't think anything was amiss but think blood pressure needed to settle a bit.

    There were several things that I wasn't expecting, so to give you a heads up

    - you most likely will have blue dye on the day (this was given to me when in the land of nod) and it turned my urine & poo green (interesting!) for a couple of days

    - I vomited unexpectedly several times following recovery - Adrian was very surprised as once was in car on the way home!  Luckily I had a bag for life handy eh?

    - got constipation (again!) from general anaesthetic (thankfully gone now)

    - the drain (you may not go home with one) is really annoying and cumbersome (and really yucky too!).

    - I had to remind the surgeon that the port needed removing, her response was "I've never done that before, how do you think best to remove it"!!  Happy to say she fathomed it out...I do worry.

     

    So as you can see not too many challenges at all, I've been doing my arm exercises religiously and think that has helped and have also been out walking (well wading in this weather!) to keep active (and out of trouble).  I haven't needed any more pain medication that paracetamol though was also given codeine.

     

    My Mother has now departed back oop north so am home alone, think the main challenge will be washing up but am learning to utilise left arm quite a lot.  Think I may leave that for the lovely Adrian to do!

    The adventure for today is to get to the hospital to have the annoying drain (that has collected hardly any yucky fluid since leaving hospital) removed later today, Adrian (the boyfriend) did offer to take me tomorrow but am too single minded & impatient to wait and am sure will be fine on a train anyway.  Anyone who gets too close will get their comeuppance!!

     

    So Nel, in short you'll be fine for Friday.  Any news on your nieces visit? If you do have any questions then do ask.

     

    My thoughts are with you for Friday XX

     

  • Kez

    Thanks for wishes, how's tricks?  Are your lungs now behaving?  I think my chest is despite it being covered in many dressings, it actually doesn't look too bad I think, a little bruised (but then who wouldn't eh?) and still pink in parts presumably from the iodine type stuff that they smothered me in pre op (at least it was a nice colour eh).

    Hope you're recovering well and are feeling well too.

    Sam X

  • Hi Lovely friend Sam

    Am so glad reading from you and that you feel better, am so glad that surgery went on well although was so may downs but we thank God.

    I went for assessment on Thursday and yes am ready for it, although am sad Sam but trusting God, my niece refused visa imagine although all paper work from hospital was attached including consent form for surgery, these people are evil,  I stated am single mum ,going through this need help with child and myself in early day but it never made sense to them, saying may e when she comes she wont ho back but seek asylum imagine.so annoying and unfair doe me, as it is I will walk Iin by myself while my friend will pick up my Angel to her house,then in the evening my sister in law will come but it will be in the night .Sam am sad really and I dont know about next week with my baby with school run, only God knows.

    Atleast your mum was waiting for you Sam giving you a kiss and good welcome back to the world. 

    I tell you on sunday I kept hard cash £120 in my bedroom I cant find where I kept it, ha ha ha I rebuke chemo brain to leave me alone ,need that money to use it but cant trace it.Lord have mercy. 

    Am so glad hamster is gone wooley!!! 

    Am the first on Friday  will be there by 7am they said around 9 will be going to theatre.

    My regards to Adrian for good job is doing, God bless him more.

    Busy days Sam trying to clean  do laundry n cooking maybe can freeze food.

    Good night Sam

    Nel

     

  • Hi! 

    I have recently finished 6 cycles of chemo, staying honest and positive throughout are what i think got me through. For me negativity doesn't work, I admit i had some darker moments but told myself this was ok, being positive really helped my family which in turn helped me. I think the worst part of the chemo for me was accepting i was going to lose my hair, however once i did, i went and got my head shaved and it was one of the most liberating things i've ever done! Keeping active and social also really helped. 

    I love your attitude, keep going, you've got this, you're amazing ️
     

    Oh and two other tips that helped me, the headspace app  (the course on cancer in particular was great) and the occasional reflexology treatment.

     

    xxxx

  • Nel

    That is pants that your niece wasn't allowed entry to the UK, I do wonder about the people in charge of this country!  It's great you've got some back-up plans and hope the school pick ups get sorted, you will however find, much like I have, that you can still do a lot post surgery (just don't try picking up anything too heavy...like a daughter!).

    And you've managed to lose £120 eh?  Well if I find it its mine!  Sounds like your chemo brain is still with us...mine is too but its remembering words & names, as a tight Yorkshire lass I'd never forget where I squirrelled away any dosh!  Hope you are reunited with your fortune soon...maybe you & your daughter should have a treasure hunt?

    Enjoy & have a lovely big dinner tonight given you'll be nil by mouth from tonight & have a good operation...I won't wish you good luck as I know, like me, that you don't need it and will be fine & dandy.

    Adrian is being very good at doing the chores that I instruct him to do, he does need a certain amount of supervision to ensure they are done to my exacting standards however!  He is only a man after all....

    I'll be thinking of you tomorrow morning, enjoy the drugs!

    Sam X