Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hey Davia, 

Ah glad to hear it all went OK today and you are feeling alright. How long will u stay in hospital? 

Glad to hear you are feeling more normal Linda.i had a zombie day yesterday and stayed in bed. Was good to get out today, I had my Look good workshop too! And you're right what a lovely bag of products, so chuffed and really enjoyed it.

How u ladies doing otherwise? 

Xx

Hi Mich

They wanted to send me home the same day but I didn't feel comfortable with that as I was sick twice because of anaesthetic so stayed it last night, be going home today, I have a drain in but no more liquid has drained from the wound, and I'm very surprised at the amount of movement I have in arm, we will see if that continues, I have some numbness in underside of arm, but it all feels a lot better than I thought it would, so don't worry to much when it's your turn, they also give you strong pain killers.

Hope your feeling a bit brighter today, 

Keep well xxx

Hi Ladies,

Mich and Linda, I'm glad you enjoyed the workshop. I was so impressed with the bag of goodies and all the make-up tips. I'm happy you are feeling better Linda, I'm sure it will continue. How are you feeling Mich?

Davia, I'm glad you are doing well. You will feel better once you're home in familiar surroundings. It's really nerve racking waiting for the results, it was a long two weeks for me!!

Take care Ladies

xxx

Hi Ladies how you all doing?

Mich you must be at the end of chemo by now, have they given you a date for op?

I still have my drain in, it only stopped draining under 30ml last night, so they give you two days and see if it continues to reduce output before taking it out, I have had a nurse phone every day and come in every other day to look and change dressings. I do have numbness under arm and also in for arm, but they say that's normal and the for arm should get better in time, you get like prickling sensation and the numb area is sensative but nothing more. My energy after op has been rock bottom, and I must confess to feeling very low, but again the nurse said this happens, it's a side effect to anaesthetic, hopefully I will feel myself again soon. 

Claire and Sue how are you doing after your ops? Have you started radio therapy yet? If so how is it? Hope your both feeling well xx

Linda how is it all going? 

Love to you all, keep well xxxx

Hey Davia,

Been thinking of you ladies today, so thanks for the message and reminder :)  Sorry to hear you are uncomfortable at the mo Davia, sounds like they are keeping a good eye on you.  Have they given you exercises to do for your arm.  Its been a tough week fo rme too after the double combo!  Was so down and fatigued had to stay in bed for 2 days after i attended the workshop.  Started to feel better on Friday and not too bad this weekend.

I started the 10 000 challenge with CR UK, to do the steps each day.  Did ok over the weekend, the hoovering did help haha!  Only on about 7 000 today but sure I'll make up for it later.  I need to have something for me to focus on as my mind is wandering a bit too much and I get morbid and all foggy brain, err more than usual!

Its my last chemo this Friday, so off to my pre assessment tomorrow, fingers crossed.

How you all doing ladies? Hope you managing ok , big hugs

xxx

Hi ladies, been thinking of you all but been fairly hectic with moving back to the UK.

Mich, last chemo, hooray! Sorry you felt so rough. Remind me what's next for you? Very impressed with your steps.

Davia I have the numbness too and it feels a bit lumpy under there. I'm sorry you're so low but yes, definitely a side effect of GA. Did you know you were  having all the lymph nodes removed?

Lindy, glad you enjoyed the course. How are you feeling now?

Sue, no one has said anything to me about more chemo, I would also have felt gutted! Now slightly worried that it hasn't been suggested... Do you have a date for the appointment?

I went up to the hospital yesterday and she's saying 4 weeks of RT, we've decided to do the lymph area as well as the breast. Going in on Thursday for the planning appointment and due to start treatment on 23rd but I want them to pull it forward slightly if possible. 23rd will be 6 1/2 weeks post op.

Love to all xx

Nat, welcome and sorry to hear about your diagnosis. How did the surgery go? Have you had chemo?

Sending love x

Hi Ladies,

Davia, I wish you a speedy recovery. Hopefully every day you will fee stronger.

Mich, well done on attempting the 10000 step challenge. I really need to get back in shape, it's easier when the weather is better. I hope you start feeling brighter soon, I know the dark days only too well.

Claire, I'm seeing the oncologist next Tuesday. I'll find out then if I need more chemo and I'll let you know what he says and the reasoning behind it. I haven't got a date for radiotherapy yet but I'm also having it for 4 weeks.

Linda, I hope you're doing ok.

Love to you all,

Sue XX

Hi, had the surgery last Thursday. 
home now resting and recovering.

Next meeting with consultant on the 20th. 
They said that I will need chemo but not any detail yet. 
 

Any hints on what to expect, welcome. 
 

Hope everyone else is coping ok.

Anastasia 

Hi Anastasia,

I wish you a speedy recovery. Chemo is not nice but it is doable. Everyones experience is different so hopefully you will be able to tolerate it well. Drink loads of water, it really helps. Take books, magazines etc. as it is really boring.

Stay strong,

Sue xxx

Hi Anastasia,

I wish you a speedy recovery. Chemo is not nice but it is doable. Everyones experience is different so hopefully you will be able to tolerate it well. Drink loads of water, it really helps. Take books, magazines etc. as it is really boring.

Stay strong,

Sue xxx