Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi Claire.

    I have been told I might need more chemo as a preventative measure, has that been mentioned to you? It was a kick in the teeth as I thought I was all done with chemo. I will know for sure once i've met with the Oncologist, I will just have to wait for the appointment to come through. The thought of losing my hair all over again is sole destroying.

    Hi Nat, welcome. I'm glad you have found our thread, all the ladies here are so supportive. Feel free to rant away, we all do.

    What's everyone up to today? The weather here is not pleasant so I doubt I will venture out.

    loads of love and hugs,

    Sue

  • Hey Sue, 

    Ah that's is annoying, but guess good thing if preventative measure. Is this in place of radiotherapy? I got my consultant appointment through this weekend, it's on thr 10th march, last chemo on 6th. I see it's a different consultant, last one was a locum so guess he's moved on. 

    Bit weird now to be thinking about next step as my hospital visits since 17th Sep have all been about chemo. So next chapter awaits.... 

    How's everyone doing? I went out for a walk around harbour and lunch yesterday, wasn't too windy so was nice. Today I felt bleugh, no emotions just zombie like so not in the mood for much. Still one my steroid tomorrow. I'm going to visit my friend tomorrow that has just had a kidney opp and not doing too well so be nice to have a catch up with her and take my mind off things. 

    Hugs all around warriors!

  • Hi Mich

    Hope you have a nice catch up with your friend today, and yes you do feel a bit strange not having to go to hospital every week for chemo, I had very mixed emotions, one respect glad it was over, but also felt a bit vunrable as not having that regular contact, it's a very weird road were on. I'm just entering the next scary stage, the op! I feel very anxious about it, about all of it, the op, the recovery, and the after effects, but as someone said yesterday, after this there is light at end of tunnel, fingers crossed  

    Sue, that must feel disappointing to go back to chemo, but as Mich says, good if it's preventative, let us know what they say as to why?  But they are the experts and know what's best

    Claire, I get where your coming from even though I haven't got there yet , it's such a massive picture you can't just unsee it, I felt like it after chemo, everyone was so happy for me but I just felt so deflated, that confused me as I couldn't wait to be finished with it. 

    Love and hugs to you all

    Keep well ladies xxx

     

  • Hi Ladies,

    I'll find out if I need more chemo after i've seen the oncologist. The surgeon said that I would probably be offered more chemo as some studies show that it can help prevent a reacurrance. My husband said to me that it sounded like I would be offered a trial but I'm not sure about any of it. My head was all over the place when I saw the Surgeon not knowing what to expect. I don't think I will have the chemo if it's a trial but if it's tried and tested then I probably will. The Surgeon did say the chemo might be taken orally but the oncologist will discuss it with me.

    Mich and Davia, what surgery are you having? if it's a lumpectomy then the recovery is not that bad. I am still sore but besides that, all good. Just think, an op, radiotheraphy and then all done!! It feels surreal, very strange to be this far along the treatment plan. The hardest thing is getting your head around it all. I am struggling mentally, mostly because friends and family can't understand why i'm not jumping for joy.

    I hope everyone had a lovely weekend,

    Love to you all,

    Sue xx

  • Evening ladies

    Day 11 and I am starting to feel 'normal' and my taste is starting to return.

     I went on the look good course today and really enjoyed it, came away with a lovely goodie bag so i'm glad i pushed myself to go.

    Davia I hope it all went ok today, sending you lots of healing x

    Sue.Mich and Claire i hope you're all doing well, I am so grateful for this group as i love the positivity :)

    Sending hugs and best wishes

    Linda x

  • Thanks Linda

    Glad you enjoyed the look good feel better course.

    I am not feeling to bad, not much pain, hope that doesn't change, I had all the lymph nodes removed from my left arm pit, the team surgical  were lovely, and the nurses are lovely, really look after you. I will get results from op in two weeks at surgeon follow up appointment.

    Look after yourself ladies, hugs all round

  • Hey Davia, 

    Ah glad to hear it all went OK today and you are feeling alright. How long will u stay in hospital? 

    Glad to hear you are feeling more normal Linda.i had a zombie day yesterday and stayed in bed. Was good to get out today, I had my Look good workshop too! And you're right what a lovely bag of products, so chuffed and really enjoyed it.

     

    How u ladies doing otherwise? 

    Xx

  • Hi Mich

    They wanted to send me home the same day but I didn't feel comfortable with that as I was sick twice because of anaesthetic so stayed it last night, be going home today, I have a drain in but no more liquid has drained from the wound, and I'm very surprised at the amount of movement I have in arm, we will see if that continues, I have some numbness in underside of arm, but it all feels a lot better than I thought it would, so don't worry to much when it's your turn, they also give you strong pain killers.

    Hope your feeling a bit brighter today, 

    Keep well xxx

     

  • Hi Ladies,

    Mich and Linda, I'm glad you enjoyed the workshop. I was so impressed with the bag of goodies and all the make-up tips. I'm happy you are feeling better Linda, I'm sure it will continue. How are you feeling Mich?

    Davia, I'm glad you are doing well. You will feel better once you're home in familiar surroundings. It's really nerve racking waiting for the results, it was a long two weeks for me!!

    Take care Ladies

    xxx

  • Hi Ladies how you all doing?

    Mich you must be at the end of chemo by now, have they given you a date for op?

    I still have my drain in, it only stopped draining under 30ml last night, so they give you two days and see if it continues to reduce output before taking it out, I have had a nurse phone every day and come in every other day to look and change dressings. I do have numbness under arm and also in for arm, but they say that's normal and the for arm should get better in time, you get like prickling sensation and the numb area is sensative but nothing more. My energy after op has been rock bottom, and I must confess to feeling very low, but again the nurse said this happens, it's a side effect to anaesthetic, hopefully I will feel myself again soon. 

    Claire and Sue how are you doing after your ops? Have you started radio therapy yet? If so how is it? Hope your both feeling well xx

    Linda how is it all going? 

    Love to you all, keep well xxxx