Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • Hi Ladies,

    Davia, let's hope it's a 24 hour bug/cold. My surgery was 6 weeks after my last chemo, they have to keep you within safe limits.The look good, feel better workshop is great and you meet people in the same boat.I've kept in touch with 2 ladies I met there and one lives round the corner to me so we've met up several times.

    Mich, the hospital gave me a bottle of Benzydamine to numb my mouth and a bottle of Chlorhexidine Gluconate mouth wash when I had a sore mouth and mouth ulcers. It really helped. 

    Linda, how are you coping with the Chemo? 

    Claire,how are you feeling? I expect you're emotions are all over the place but you are nearly at the end of treatment. let us know if you need radiotheraphy. It is meant to be a walk in the park after Chemo.

    Love and strength to you all,

    Sue xxx

  • Hey ladies,

    Ah thats great news Claire, so happy to hear that :)  You feeling ok after surgery?

    Thanks Sue, my mouth is feeling better this week.  I do have the Chlorhexidine Gluconate mouth wash and some other gel solution stuff that tastes like liquirish.  But this week it seems as if i have the hand rash back and nose bleed.  Real mixed bag eh.  I have ordered manuka honey, its coming tomorrow, ooh and apple cider vinegar.  Heard its really good for you and you can drink it with warm water and honey as well as cooking with it. 

    Good luck for Friday Sue :)

    sorry to hear you have a cold Davia, such a pain.  Hope it clears up in the next few days.  Sounds like you are doing all the right things.  Ooh a big goody bag, cant wait!  I'm looking forward to meeting other ladies too!

    it is weird with emotions, you feel more anxious towards end of chemo, i thought it would be the other way around.  Guess its a case of near the end of one journey but still a long road. 

    I baked a cake for my friends birthday today so feel good about that, faffed quite a bit in the kitchen so bit of back ache. Its her 60th so she will be chuffed and going out for dinner tonight.

    Hope you all well ladies and sending some good vibes

    xxx

  • Hey ladies 

     

    How's it going? Thinking of you today Sue

    I'm at the unit now having my last Taxol /Carbo combo! And I'm actually still awake! 

    Any plans for the weekend? 

    Big hugs xxx

  • Hi Mich 

    Just think only two weeks left of chemo it will fly by, hope your mouth is feeling better. Have you got scan after chemo? I had to be two weeks clear of chemo for pet scan. 

    Sue also thinking of you xx

    Claire how you feeling? Are you having rads?

    I'm getting ready for Tuesday, got to be at hospital at 7am I'm hoping to be first in, I am feeling very nervous but keep telling myself that lots of ladies have had this op and managed,  my pre op was very straight forward, they say 1-2 nights stay depending, its normally 1. 

    Keep well ladies xxxx

     

  • Hey Ladies.

    I had my 1st Doxe on 14th Feb, constipated on day 2 and by day 4 I was completly out the game,I actually told my family I was having no more chemo as the pain was worse than I've ever experienced. I've not slept for the last 3 nights and i actually spent the last 2 days crying day and night! After many calls to my GP i now have Oramorph so hoping I get some sleep tonight. 

    Anyway managed to nod off at 6am this morning and had to get back up at 7.30 as i had an appointment to see my surgeon, he reasurred me they will lower the dose of the next cycle. He felt where my lump was and he said it has gone!! Spoke about my Brca as not had results yet but he said he is happy to do preventative surgery of my choice if i am positive. My op date is pencilled in for 22nd April.

    Sorry for the long message lol I hope you are all doing ok, remember ladies its bloody tough but we are all warriors.

    Love & Hugs

    Linda xx

  • Hi ladies,

    Linda, I'm sorry you have had such a rough time. Let's hope the reduced dose will be kinder to you. You're emotions will be all over the place so it's no surprise you are tearful.

    Mich how's the rash and nose bleeds?

    Davia, good luck for Tuesday. I'm sure you will be fine,  I was so nervous too, It's the unknown.

    Claire, how are you recovering? I'm still sore and tender but ok besides that.

    On a positive note, I saw the Surgeon yesterday and I am officially cancer free. I just feel numb and guilty that I don't feel like doing cartwheels. It's really strange as I should be estatic!! I am still very scared of a reacurrance but I will learn to live with it.

    Lots of love to you all and have a wonderful weekend,

    Sue xxx

  • Oh bless you Linda, you have had a really tough time of it, fingers crossed when they reduce the dose it will be better for you. Good new that the lump has gone, xxx

    Sue that's amazing news,  really happy for you xxx

    Have a good weekend ladies, keep well xxx

     

     

  • Hi guys, 

    I was diagnosed with BC earlier this year and yesterday my consultant confirmed that it is triple negative. 

    Scheduled for second surgery on Thursday to check lymph nodes and clear more margins. Chemotheraphy to follow after. 

    Thank you for all your posts, it makes me feel there is light in the tunnel after all. 
     

    xx
     

     

  • Morning ladies, 

    Ah that's great news Sue, so glad to hear that. I get the numb feeling as it's been quite a rollarcoaster we have been on and no doubt we feel quite different with everything we have experienced. But we'll take this experience forward and create something positive like our Warrior group! There is a course I'm wait listed for when treatment finishes. It's arranged by Breast cancer now called moving forward. It's one day a few for a few weeks and helps you cope with getting out there after treatment and sense of normality. Ill see if I can find the link.

    Aww so sorry Sue, sounds awfull. Al glad to hear they will reduce your dose and good you have your opp appointment. I'm still waiting for mine, prob come through in a few weeks. 

    Good luck for Tuesday  Davia. So you have much planned this weekend, maybe things to keep your mind off the opp.

    I'm doing ok, was wide awake yesterday for a change and up at 4am with breakfast and steroids. Going for a walk in a mo, tomorrow the weather is going to be worse. No sore mouth whew and rash is getting better. Nose bleed is OK for now so overall a good day! 

     

    Hey Nat05

    Welcome to our group of Triple negative thrives! As you can see we are all in different stages of our treatment and getting there. It does Deff help chatting to each other about the good, bad and bleugh! So feel free to message any time you want to say hi or rant! I probably will when my steroid high wears off. 

    Have you had a lumpactomy or mascetomy already? Mine is in my lymph nodes so ill have those taken out too. I have 2 more chemo then I'll see the consultant about the opp and radiotherapy. 

    Ah and whatever you do don't Google, I scared myself shirtless! Stick to the official sites, breast cancer now, macmillan and download the Becca app.

    Big hugs ladies xxx

  • Sue, I feel exactly the same. Everyone says you must be thrilled/relieved/overjoyed but actually I'm just scared.