Uncertain information

Today on his 3 month check up  my dad was told that his PSA level had risen from 4 to 8 despite being on the hormone meds to keep his stage 4 prostrate cancer at bay. He was also informed that there were spots on his lungs. His wife and him , who have been dealing with the initial diagnosis as well as can be expected, now feel as if “that’s it”

I was present at the initial visit and when my dad and his wife stopped “ taking the information in “ the consultant addressed me. Today however I was not present in the room when this new information was given. I’m not certain if either have picked up all the correct information or have misinterpreted it. 

What can I do?

Can I contact the consultant with my dads permission to clarify the situation. 

Without being 100 percent sure of the exact information can anyone at least guide me to where I might gain info or relay something of their own experiences. It would be very much appreciated.

  • Hi Oprah, is your father fit enough for cemotheropy, my psa was 1581 gleason 8 stage 4 three years ago I'm on permanent hormone therapy and cemo when neaded it's not curable but treatable,. 

    Billy 

  • Hi there,

    Yes, if your dad gives permission, his doctor can discuss his medical situation with you. 

    The only thing I would say is to be prepared. I contacted my dad's consultant based on my dad totally misunderstanding his prognosis and ever since  have been on a rollercoaster journey of knowing more than my dad and not knowing what to do with this unexpected information. I suppose the question is whether you think you should explain the situation to your dad or the doctor try again. It is a heavy burden to carry in my experience.

  • Hi the best thing is be staight tell your mum and dad all you know ime sure he will appreciate it if you keep it to yourself it will be a rod to beat yourself up with as time goes by ime sure your dad will respect you more for it i would. Its difficult to take it all in when its you thats ill and drs are pretty evasive now for fear of litigation ime sure your dad can take it after all you are you because of him . But my best wishs to you and your mum and dad . They say this and that but in truth with this rotton desease we none know how long we have some are told weeks and live years some are told its controlable and only last weeks if you can afford to go private for consultations i would  as the nhs now is so slow its amazing how much more time they have fore you when they are getting a big wad of cash its the money they like or they wouldnt do it instead of waiting weeks it can be next day you only need to go private for consultations not the treatments 

     

     

     

    .hope all goes well .paul