Papillon Treatment

Hi I was diagnosed With anal cancer six weeks ago and I am looking for advice from anyone that has had papilion treatment or anyone that has information on it .I am awaiting an appointment .The hospital I am at have advised a Colostomy bag and seem anti papillon treatment but would still like to explore this option. 

Many advice would be appreciated and any one who has had it good or bad out comes .Just need some opinions ...feeling a bit lonely and scared as hell .

kind regards

J x

Parents
  • Hi Jay, sorry to read about ur diagnosis. There's never a good time to be told you have the big C, but as long as it's discovered & treated early enough, it's definatley curable, so now we call it the little c.

    Papillon treatment is for rectal cancer as the machine they use to administer it gains entrance through the back passage. If the tumour is more than 3.5cm in size, it has to be shrunk by means of EBRT & u usually get a course of chemo at the same time. There is a video of the Papillon procedure on YouTube. I'm not medical, but I have had the treatment myself 17 months ago, so I know how it all works. From what u have said, it sounds to me like u have colon cancer & that is why u are being offered surgery, where the infected park of ur colon will be removed & then they reattach it. I have 2 friends who both have had this operation done & are still here after 3yrs with no reoccurrence. One was stage 3 & the other stage 4. Surgery is always the gold standard offered at the moment in this country, as this has the highest success rate, I hope this helps & I If u need anymore info I will try & provide it for u. 
     

    S

  • Hi,

    Thanks for your reply. Mine is a low recal tumour about 4.5cm. I was offered surgery no mention of papillon it was just a google search that caught my interest, I'm so pleased that it's worked for you. I'm petrified of open surgery with a possibility temporary stoma but need it gone. I've gone backwards and forwards in my head, which route should I take. It's so difficult, it's a horrible position to be in isn't it,

    xx

Reply
  • Hi,

    Thanks for your reply. Mine is a low recal tumour about 4.5cm. I was offered surgery no mention of papillon it was just a google search that caught my interest, I'm so pleased that it's worked for you. I'm petrified of open surgery with a possibility temporary stoma but need it gone. I've gone backwards and forwards in my head, which route should I take. It's so difficult, it's a horrible position to be in isn't it,

    xx

Children
  • I HAD a lower rectal tumour staged at T3N0M0 & measuring 55mm. I was told it had to be shrunk before the surgeon could operate. I would also have been left with a pemament stoma & colostomy bag, so slightly different for u. I do remember being told that this operation on a female is easier to do, due to having better access to the rectum because females have a wider pelvis for child birth, that will be why u don't require chemoradiation before the op. Non the less still a difficult decision for u to make, but on the plus side whatever u decide it's a course that will save ur life. I hope this helps u & good luck with woteva u decide. X