I tell people Jay the stress and worry is worse then the cancer.I would really stress to them that please can the bag be temporary.I was told this surgery was not available to me .I then refunded al treatment and maraculously they have now told me that it is not available at my hospital but another surgeon will do it .... this is 2 years on .I would take this option but literally beg them that you want it to be temporary.Good luck Jay remember to get some sleep CBT oil will allow you to relax your mind Holland and Barrat sell it but there is better out there .Chemo and Radiation can be quite tuff especially with young children and chemo on its own will be a doddle there is a tablet out there where you do not loose your hair ask your surgeon McMillan nurse or oncologist .here if you need to talk .xx

I tell people Jay the stress and worry is worse then the cancer.I would really stress to them that please can the bag be temporary.I was told this surgery was not available to me .I then refunded al treatment and maraculously they have now told me that it is not available at my hospital but another surgeon will do it .... this is 2 years on .I would take this option but literally beg them that you want it to be temporary.Good luck Jay remember to get some sleep CBT oil will allow you to relax your mind Holland and Barrat sell it but there is better out there .Chemo and Radiation can be quite tuff especially with young children and chemo on its own will be a doddle there is a tablet out there where you do not loose your hair ask your surgeon McMillan nurse or oncologist .here if you need to talk .xx

Hi Justine

You're right the stress and the anxiety is the worst. I wasn't eating or sleeping for 2 months then I had a meeting with my consultant and she was helpful and reassuring, she believes open surgery and a possible temporary stoma would be the best option for me. I won't need radiotherapy first to shrink it as I thought I might but I would if I had papillon. I had my symptoms for months before I went to my doctors, stupid I know but  was scared of what they might find. I think I may get some oil we have a local store. Thanks again and I hope you're feeling well now xx