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Muscle & joint pain due to tamoxifen?

Lindy-lou
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Hi everyone I am a cancer survivor I was diagnosed with breast cancer in July 2011. I had my lumpectomy in August of that year got the all clear on the 13th September 2011 & started my radiotherapy in November finishing in December. I started my tamoxifen once all of that was over & I must admit I thought I was pretty lucky to have got away with no side effects however about 6 months later I started with muscle aches in my calves & aches in my knee joints & neck then it pretty much spread to all of my body , then I was diagnosed with fibromyalgia but on speaking to various people I think it’s tamoxifen I’ve been on it for 8 years now & I feel like it’s time to come off also the hot flashes are a nightmare. Does anyone else have similar symptoms to mine I love to hear from you 

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    Hi Lindy Lou and all fellow survivors 

    I had same as you back in September 2015 I'm into my 6th year on tamoxifen and main side effects are the hot flushes and worse joint pain all over!!! I don't sleep much due to tossing and turning and having to stretch in agony!

    I did have a break for a few months but was advised by my consultant to go back on it as my flushes were still much trouble. The joint pain is still not good from my shoulders to my feet all over!! I have my consultant calling me tomorrow for a review since going back on it so will ask what they could suggest I try. I'm also wondering how my bones are now effected and could I have arthritis? it's hard I know what to think as we are governed by the specialists aren't we. I have tried all the drugs like tamoxifen and meds to help with flushes but nothing has worked to date. Unfortunately like I always hear what works for one doesn't for someone else. I'm just so glad I'm still alive like millions of others including you, so good luck, speak to your experts who look after you and be kind to yourself. Take care xx

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    Hi Lindy Lou and all fellow survivors 

    I had same as you back in September 2015 I'm into my 6th year on tamoxifen and main side effects are the hot flushes and worse joint pain all over!!! I don't sleep much due to tossing and turning and having to stretch in agony!

    I did have a break for a few months but was advised by my consultant to go back on it as my flushes were still much trouble. The joint pain is still not good from my shoulders to my feet all over!! I have my consultant calling me tomorrow for a review since going back on it so will ask what they could suggest I try. I'm also wondering how my bones are now effected and could I have arthritis? it's hard I know what to think as we are governed by the specialists aren't we. I have tried all the drugs like tamoxifen and meds to help with flushes but nothing has worked to date. Unfortunately like I always hear what works for one doesn't for someone else. I'm just so glad I'm still alive like millions of others including you, so good luck, speak to your experts who look after you and be kind to yourself. Take care xx

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