Muscle & joint pain due to tamoxifen?

Hi everyone I am a cancer survivor I was diagnosed with breast cancer in July 2011. I had my lumpectomy in August of that year got the all clear on the 13th September 2011 & started my radiotherapy in November finishing in December. I started my tamoxifen once all of that was over & I must admit I thought I was pretty lucky to have got away with no side effects however about 6 months later I started with muscle aches in my calves & aches in my knee joints & neck then it pretty much spread to all of my body , then I was diagnosed with fibromyalgia but on speaking to various people I think it’s tamoxifen I’ve been on it for 8 years now & I feel like it’s time to come off also the hot flashes are a nightmare. Does anyone else have similar symptoms to mine I love to hear from you 

Parents
  • I have been on tamoxifen for 6 years. I had aches and pains at the start until I found the Teva brand recommended by someone else and then never had any side affects. Sadly I can't get the brand anymore and my aches and pains are back with a vengeance with the different brand I now have, to the point I don't think I will carry on. Convincing your doctor it's the brand that's at fault is difficult but I've heard it so many times and we know our bodies. 

  • I thought it was just me! Fingers, wrists, hip, left foot!!! I get up out of a seat like an old old lady!!! I've been taking Tamoxifen for 8 months now to counter a recurrence of ovarian cancer (who knew?!) and because it has had the desired effect of calming everything down, I've kept my mouth shut about the side effects. But my darling husband now thinks it's time to talk. I'll mention it to my onc at next appointment and let you know what he thinks. Have a great day, everyone!

  • Kath1961i had a lumpectomy and 3 lympnods removers beginning of November and  i started taking tamoxifen in November I started with pains everywhere the pain black as to be the worst atm  I do get pains in my feet . Hands . Calf's but the back pain is something else I take tablets got. Vitamin d deficiency so I hoping the pain will subside 

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  • Kath1961i had a lumpectomy and 3 lympnods removers beginning of November and  i started taking tamoxifen in November I started with pains everywhere the pain black as to be the worst atm  I do get pains in my feet . Hands . Calf's but the back pain is something else I take tablets got. Vitamin d deficiency so I hoping the pain will subside 

Children
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