Muscle & joint pain due to tamoxifen?

Hi everyone I am a cancer survivor I was diagnosed with breast cancer in July 2011. I had my lumpectomy in August of that year got the all clear on the 13th September 2011 & started my radiotherapy in November finishing in December. I started my tamoxifen once all of that was over & I must admit I thought I was pretty lucky to have got away with no side effects however about 6 months later I started with muscle aches in my calves & aches in my knee joints & neck then it pretty much spread to all of my body , then I was diagnosed with fibromyalgia but on speaking to various people I think it’s tamoxifen I’ve been on it for 8 years now & I feel like it’s time to come off also the hot flashes are a nightmare. Does anyone else have similar symptoms to mine I love to hear from you 

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  • Wow ladies, i too found this post after googling joint pain and tamoxifen. I was diagnosed with hormone receptive lobular bc in July 2019. Partial mastectomy and radiotherapy then started tamoxifen. I have to say I'm not brilliant at taking it daily - it's a bit of a mental battle! But have been on it now since Dec 2019 and have been told I need to take it for 10 years. Over the past 3-6 months i too have aches in my feet/ankles, the base of my feet, my left hand - at the base of my hand, under my little finger, my left knee has now also started aching. When I get up in the morning I walk like an old lady (I'm 50). Also struggle when getting up from sitting for a period of time. My dexa bone scan in Nov 2019 (before tamoxifen) showed I have osteopenia - the onset of osteoporosis, so have Adcal D3 tablets to take (not good at taking these either). I get horrendous cramps in my feet and toes and feel so tired all the time. I haven't been to a dr as feel Im coping but I am conscious that the aches are getting worse. To be honest - if my qualify of life really started to suffer I have no qualms about stopping my tamoxifen. But I'm not sure if these aches and pains are tamoxifen or the menopause - which I feel cheated that I can't take any HRT for (my friends are all raving at how amazing it has made them feel). Sorry for the moan but good to know I'm not just going mad and we all know how each of us feels.

Reply
  • Wow ladies, i too found this post after googling joint pain and tamoxifen. I was diagnosed with hormone receptive lobular bc in July 2019. Partial mastectomy and radiotherapy then started tamoxifen. I have to say I'm not brilliant at taking it daily - it's a bit of a mental battle! But have been on it now since Dec 2019 and have been told I need to take it for 10 years. Over the past 3-6 months i too have aches in my feet/ankles, the base of my feet, my left hand - at the base of my hand, under my little finger, my left knee has now also started aching. When I get up in the morning I walk like an old lady (I'm 50). Also struggle when getting up from sitting for a period of time. My dexa bone scan in Nov 2019 (before tamoxifen) showed I have osteopenia - the onset of osteoporosis, so have Adcal D3 tablets to take (not good at taking these either). I get horrendous cramps in my feet and toes and feel so tired all the time. I haven't been to a dr as feel Im coping but I am conscious that the aches are getting worse. To be honest - if my qualify of life really started to suffer I have no qualms about stopping my tamoxifen. But I'm not sure if these aches and pains are tamoxifen or the menopause - which I feel cheated that I can't take any HRT for (my friends are all raving at how amazing it has made them feel). Sorry for the moan but good to know I'm not just going mad and we all know how each of us feels.

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