Hi there

i signed in tonight too.

dont be guilty about looking on google we all do it.

i can see your going through a tough time and I hope that whatever the outcome you have you have the strength and support around you to cope. 

My son has been diagnosed today with lymphoma again after being in remission for months.

my worry is that we have been told his treatment is now going to be much more severe than last time so long road ahead.

iwish you well xxx

Oh bless you x 

how are you coping with the news? Can’t even imagine what you must be going through! 

Ive 3 children and it scares me to think of them being poorly.... 

so much going on just now..... finding it all tough trying to be strong (that’s my normal role... the strong one) gonna ring our gP tomorrow for info x 

not for reassurance just need timescales in my head x 

thanks for replying means a lot xx 

Hi MummyD,

Not easy to stay positive with all that going on.

You'll be in good company here if you want to rant, vent, get advice or whatever, it's a good club even if it is one no-one wants to join!

Let us know how your husband gets on with his tests, and if we can give you any moral support as you face losing your father-in-law just ask.

I've lost two very good friends to brain cancer (in their early 30s) and more recently a boss that I had a good relationship with (I only took the job for the chance to learn from him).  However my mum has somehow defied very slim odds twice now so I'm hoping with my breast cancer not being caught till stage 3 that I manage that too!

We're all here as and when you need us.

LJx

Hi thanks for replying 

spoke to our gp and said we will probably have to wait 10-14 days for biopsy results ..... atleast now I know when to expect them... 

i took hubby to drs as he’s been surfing with anxiety so he has been signed off for a couple of weeks. It’s difficult seeing him so down and numb.... and even harder speaking to his mum about it all as she already has so much on with my father in law. 

A fear for my husband being depressed is he has seen the deepest of depression with my dad who is just unable to turn a corner so this too is playing on his mind. 

Im amazed at how many people you know that have cancer.... it really does affect everyone’s lives. 

Hoping to hear about biopsies this week..... father in law sees his consultant on Tuesday next week so hoping we have some food news - so hard not being on the same piece of land as them... when my mum was dying she was local and I lived 5 mins away..... lile

with most things it’s just one thing after another at the moment 

just got the wee ones in bed cuddled the youngest that little bit extra before he went down - think it was just right as at 2 his is oblivious to all of it. 

You seem very strong I can’t imagine what you must be going through x 

Nice to know there are people around to talk to xx 

Hi,

Been a member for a while but my first post.

I was diagnosed with ALL in May 2011. I collapsed at home and was taken to the nearest A&E where my blood counts were VERY low, platelets were 2 given a few days to live.

Spent two weeks in ICU and had the "last rights twice". Picked up a little and transfered to Addenbrookes. They started a standard "chemo/radio" treatment and I acheived remission in early 2013.

In remission for 2014 to November/2015. Back in Addenbrookes for relapse treatment, chemo into 2016. Prepared for stem cell transplant which took a long time to get my blood counts "correct" External donor for thestems cells

Stem cell transplant finally in May 2017, external donor all OK until November 2017

November 2017 ALL "blasts" cells returned!! I thought that was the end for me, palative care I assumed would be my "end".

However, thanks to UCH London I managed to get on their Stem Cell (Cart 19) trial and had the modified stem cells in April 2018 and now??

I am feeling fine and typing a post in the forum!!!!

Reason for post, keep  on fighting we will beat the "C" one day!!

Nick, Seven years and 4 bullets dodged thanks to CR UK

Waow Nick, what a story!

You are a survivor that's for sure :)

Hope you're living it up now?

Thanks for the inspiration.
 

LJx

Wow...... a true fighter and survivor!! So great to hear a happy ending especially as from what you wrote looked like there was once no hope...... I suppose we need to understand there is always hope!!