Hi there

i signed in tonight too.

dont be guilty about looking on google we all do it.

i can see your going through a tough time and I hope that whatever the outcome you have you have the strength and support around you to cope. 

My son has been diagnosed today with lymphoma again after being in remission for months.

my worry is that we have been told his treatment is now going to be much more severe than last time so long road ahead.

iwish you well xxx

Hi MummyD,

Not easy to stay positive with all that going on.

You'll be in good company here if you want to rant, vent, get advice or whatever, it's a good club even if it is one no-one wants to join!

Let us know how your husband gets on with his tests, and if we can give you any moral support as you face losing your father-in-law just ask.

I've lost two very good friends to brain cancer (in their early 30s) and more recently a boss that I had a good relationship with (I only took the job for the chance to learn from him).  However my mum has somehow defied very slim odds twice now so I'm hoping with my breast cancer not being caught till stage 3 that I manage that too!

We're all here as and when you need us.

LJx

Hi thanks for replying 

spoke to our gp and said we will probably have to wait 10-14 days for biopsy results ..... atleast now I know when to expect them... 

i took hubby to drs as he’s been surfing with anxiety so he has been signed off for a couple of weeks. It’s difficult seeing him so down and numb.... and even harder speaking to his mum about it all as she already has so much on with my father in law. 

A fear for my husband being depressed is he has seen the deepest of depression with my dad who is just unable to turn a corner so this too is playing on his mind. 

Im amazed at how many people you know that have cancer.... it really does affect everyone’s lives. 

Hoping to hear about biopsies this week..... father in law sees his consultant on Tuesday next week so hoping we have some food news - so hard not being on the same piece of land as them... when my mum was dying she was local and I lived 5 mins away..... lile

with most things it’s just one thing after another at the moment 

just got the wee ones in bed cuddled the youngest that little bit extra before he went down - think it was just right as at 2 his is oblivious to all of it. 

You seem very strong I can’t imagine what you must be going through x 

Nice to know there are people around to talk to xx 

It is a great forum, I've only been on it a number of weeks and have found the support from other folk invaluable.  The biopsy wait is one of the hardest parts so I'm liking that you have a little one you can cuddle up to, even in the worst of times their little faces can make you smile.  My twin arrives tomorrow with my nephew.  I was meant to be going to them but it had to be called off so I could start chemo asap.  I will be quiet on the boards this week probably because of that.

Happy to discuss depression if you ever want to private message me about it (or on here).  I was diagnosed with Bipolar Disorder after a complete breakdown at 24.  I do fine now, but I certainly find my own head being against me harder to deal with on a daily basis than physical illness.  My husband also finally got diagnosed with depression just over a year ago (I literally dragged him to the GP) so I also understand how tough it is seeing a loved one go through it.

One thing you might want to remind your husband of is not to let his brain trick him into thinking he'll be the same as his dad.  If he sees anything in his depression that reminds him of his dad's experience that could suck him in deeper, so it's important to remember that even when the illness physically manifests in the same way each sufferer's experience is still different because they're different people.

And thanks for your kind words, but I'm not really strong, I think I just always 'knew' I would get it around this age (same as my mum did).  My gut always said it's genetic in our family but the lack of women in our family (until my generation) means they didn't test my mum's for genetic markers.  They are now testing mine thankfully.  I wish they'd referred me for early screening the times that I have asked previously, but at least they did it this time, otherwise I'd have got to stage 4 with no idea I had it.  A 6cm lump and it still can't be felt because both my breasts are naturally so lumpy.

The stats are on my side for the moment anyway, and I studied Maths so I find it quite easy to trust the stats I guess.

Better get to bed, breast clinic tomorrow.  Will catch up with you soon.

LJx

Hi,

Been a member for a while but my first post.

I was diagnosed with ALL in May 2011. I collapsed at home and was taken to the nearest A&E where my blood counts were VERY low, platelets were 2 given a few days to live.

Spent two weeks in ICU and had the "last rights twice". Picked up a little and transfered to Addenbrookes. They started a standard "chemo/radio" treatment and I acheived remission in early 2013.

In remission for 2014 to November/2015. Back in Addenbrookes for relapse treatment, chemo into 2016. Prepared for stem cell transplant which took a long time to get my blood counts "correct" External donor for thestems cells

Stem cell transplant finally in May 2017, external donor all OK until November 2017

November 2017 ALL "blasts" cells returned!! I thought that was the end for me, palative care I assumed would be my "end".

However, thanks to UCH London I managed to get on their Stem Cell (Cart 19) trial and had the modified stem cells in April 2018 and now??

I am feeling fine and typing a post in the forum!!!!

Reason for post, keep  on fighting we will beat the "C" one day!!

Nick, Seven years and 4 bullets dodged thanks to CR UK

Waow Nick, what a story!

You are a survivor that's for sure :)

Hope you're living it up now?

Thanks for the inspiration.
 

LJx

Wow...... a true fighter and survivor!! So great to hear a happy ending especially as from what you wrote looked like there was once no hope...... I suppose we need to understand there is always hope!!