Tams Terminal

Just wrote this for my profile . . . cut and paste!!!!!!

Lung cancer diagnosed in September 2014: treated with op to remove left upper node and course of chemo (just in case)
Year later brain mets and told I was terminal with average prognosis of 6-9 months; treated with gamma knife surgery which was repeated a year later (October 2016) for a new tumour.
Still here and living reasonably without any medical intervention. Only real issues are related to the cancer treatment which has left me with peripheral neuropathy which will never get better.
I have been banned from Macmillan community forum for making statements about sugar feeding cancer: this was seen as 'negative' and 'unsupportive' of those people who enjoy cake. I'm banned but my comments are still there?
I'm hoping to find more empathy and support for my views on this forum??????

  • Fair one, didn't notice the '?'

  • Clever, clever man that Mr Trump.

  • Hi everyone.

    I’m just stepping to remind you that while this is your space, and it is great to exchange tips on things that have helped you, we do ask that for everyone’s safety to ensure you stick to our terms and conditions and not to promote or advocate things that claim to be cancer cures. This is because many so called ‘alternative therapies’ have not been scientifically tested in the same way as conventional treatments.

    Even some complementary therapies may interact with other medicines you are on, making the conventional treatment less effective, so although it’s great to share, do check with your doctor before taking anything even if it sounds harmless.  Sometimes their interactions and side effects may not be known.

    The reason we have this rule in place is because some alternative therapies can actually be dangerous. We have a section on our website about complementary and alternative medicines which it may be good to look at.  There is also information on our website about the difference between complementary and alternative therapies.

    Thank you
    Renata, Cancer Chat Moderator

  • Please don't apologise 'mate'  even though I have been struggling to join in the conversation I have really enjoyed the direction it has taken.  Hopefully I can continue to join in with my new account.

    Tams

  • I have in the past had mouth ulcers when I have been run down.  My answer - which goes against all logic - was to dab it with lemon juice.  Excrutiating for a few seconds but I'm sure it helped
    Perhaps it was the vitamin C??????

  • Hi Tam,

    Such is my cognitive ability that I don't really do much research and I probably wouldn't take much in from watching a video.

    When I was first diagnosed a couple of my sons sought some cannabis oil for me but I didn't take it because any change in my condition and we wouldn't know the cause. The time for me to try cannabis would be after it had been trialled with accepted treatments and the range of effects known.

    I'm not one of the people who'll go to any length for a cure, I think I'm just too lazy.

    Having said that, I don't just take the word of medics as gospel, I've been misdiagnosed and ignored too often. I've also just started a complaint procedure in order to get answers that I need although it wouldn't be appropriate to say any more about that online until the mtter's resolved.

    I'm capable of understanding a fair amount of medical terminology but without the long period of learning that doctors go through which is ongoing, I, along with most, have a lack of expertise, an inherent bias and will probably come to wrong conclusions.

    You'll note that even doctors defer to their colleagues for various specialties. A radiologist will produce a report of a scan for other doctors and the terminology will have precise meaning. An orthopedic specialist will deal with bone issues etc.

    So I'm somewhat wary of people on the internet who've claimed to do their own research and are now advising the world. The field of medicine is simply too vast for one person to grrasp it all as claimed.

    If we imagine that person x eats a particular type of cabbage leaf and a noticeable effect occurs and it's efficacious for whatever illness he has, at first sight he's found a 'natural' cure.

    But maybe that cabbage leaf when eaten by the rest of the populace produces a statistical negative effect, due to another of it's properties. It may be that person x has a genetic anomaly that makes this cabbage leaf efficacious. But only when he eats two leaves, along with a particular sort of tomato and fried bacon, which constitutes his normal breakfast.

    What science does is experiments to find what constituent of this cabbage leaf has what effect, isolates the compound and trials it with a large group. It may then become a widespread treatment or it may be found to only be of benefit for a particular subset of people, in certain circumstances.

    I appear to have drifted off into wibble and have no idea of the point I intended to make.

    More coffe, I think.

  • I discovered yesterday that under the new psychoactive substances act, the gas used to make whipped cream (N2O) is illegal! The irony is that you can buy small canisters of the stuff to put into your own whipped cream maker.  (At least, that's what I told the judge). 

  • I used to eat a lot of cabbage leaves. But then one morning, after a particularly long sleep, I found I'd sprouted a pair of large white wings, and grown an extra pair of legs. I'm also very attracted to bright lights. 

  • Actually this episode is more a political history of cannabis rather than encouragement or reasons to give it a try.  The rest of the series will be more about the benefits etc.

  • Oooo I don't like the sound of that Taff - drifting into "wibble" sounds quite confusing and painful! Is there something you could take for it do you think? ;)