Hi all,

I'm very glad I found this thread which is bringing me some much needed hope and optimism. Hats off to all, I'm amazed at your strenght, good spirits and resilience!

After 6 long months of tests and wrong turns, my partner has been diagnosed with oral cancer last February, aged only 40. By then it had spread to 2 lymph nodes, plus a slight erosion of the bone. The primary site is either the floor of the mouth or the salivary gland -they're not sure... 

I'm only 32 and at the age one plans a family instead of dealing with something like this, but life had other plans! He's gone through neck dissection + 6 weeks radiotherapy + 2 rounds of chemo (was supposed to have 3 but his kidneys couldn't handle it). He's recovering pretty fast, which I'm so glad to see.

But now feels like a waiting game which we find quite difficult to handle -how did you cope with that time? I'm still worried and find it difficult to look to the future with optimism...

Lili

Hi Lili. Well done to your boyfriend for coming throughbtretament and out the other side I am almost 2 years post radiotherapy and happily living my life. As for the next few weeks and beyond keep,positive don’t dwell on anything yiu can’t indluence let the chemo and radiotherapy domits magic it keeps working for many months .my scan was at 18 weeks post treatment and to be honest I put faith in my team oncologist and never looked back. Start a new hobby maybe something you can do together , even the simple pleasure of a walk .Maybe think about getting 2 bikes and start keeping fit  just a thought my cycling was a real pick me up for me getting out and doing my first 8 km not far but freedom. Don’t know I forgot you’ve read my blog it’s www.radioactiveraz.wordpress.com it may he,o. Good luck for the future and please remain Poland’s keep in touch Hazel xx

Thank you both so much for your kind words and encouragement!

It really helps to hear from people who made it to the other side.

My partner finished his treatment 2 months ago; he now has to go for a manual check up with the surgeon every 2 months to check his mouth and throat. It seems like the start of such a long journey, but onwards and upwards. I will keep you updated.

L

Hi yes 2 months is about right for first 6/8 months then go to every 12 weeks until year 3 then every 6 months in normal times. At the moment I am almost 2 years post radiotherapy but haven't been seen since February it's a post code lottery I know other same cancer are still being seen. I have had 2 phone calls and next one is Aldi a phone call. But if I had any doubts I would ring and be seen. At the moment they are trying to see people who have been diagnosed and in early post treatment which is fine by me just strange how same hospital has different policies. 
best wishes 

hazel x

Hi,

I see nobody posted for a while, are people still on here before I say anything.

Chaz

Hi Chaz you may be better starting your own thread. I do check this occasionally 

.

I am 2 year post radiotherapy for scc h ov tonsil cancer with several affected lymph nodes 

hazel

Thanks and how do I do that?

Hi Chaz

The thread is not active although any posts send email  notifications to the contributors. It is a good resource for  info and links on tonsil SCC.   

I am 22 months post treatment and doing just fine. Prognosis is very good especially for HPV driven tonsil cancer. 

 How are you doing? 

Paul

Hi Paul

Sat in waiting room to have the PEG tube fitted.

About to start Radiotherapy and Chemotherapy on 14th Dec for 6 weeks and just looking for people to give me some tips that may help the process to go easier.

Glad your doing fine and thanks for reply

Chaz