Hi me again 

has anyway had any problem with swollen neck I woke up today and I look as thou I have 3 chins I haven’t been bothered with this before just a bit unsure what’s going on now 

thanks mariamac 

Hi sound so like the start ok lymphodema mention it to radiotherapy team or nurses as there are exercises yiu can do plus drain massages

good luck 

hazel 

Thank you I did think that myself but wasn’t sure went to the doctor today who took blood just am white blood cells then I did start my exercises last night so wonder if it’s a connected. It’s quite annoying as generally am feeling so much better my throat is still sore to swallow but I got the tube removed as I was relying on it to much and being a coward so trying to eat 3 small meals and drink fortsip in between so hopefully the weight loss might stop thanks for your advice hazel am sure I will ask more questions 

cheers maria 

Hi, just wanted to say I had quite bad lymphedema a few weeks out from treatment but now at six months is massively  improved, I am now taking a small dose of bendrofluazide a diuretic and I think that helps, wet must have to condone so much fluid to eat etc that o was getting bloated and swollen! I notice if I miss it, because I also get some swelling in my vocal chords... It gets better! Seriously mine is significantly improved over the last six weeks or so....xxx good luck...x

Ps folks my scan was  clear... Six months out from treatment now..x

Thank you Paula, I woke up today and it has reduced us size I don’t understand anyway I have started my exercises so hope that also helps and also I suppose when we are not eating the muscle will skip so hopefully it will sort it self out glad your scan was clear you must be delighted I get mine in January I am 5 weeks post treatment so still sore to swallow and trying now to reduce the meds 

cheers Maria 

Hi Paula fantastic news in scan touch wood I haven’t had lymphadenitis fingers x. Still in Spain managed 3 bike rides only 28 kM

but wow what a feeling of freedom . Radiation burn along tongue reducing slowly just bubbling a baguette eith a dude if grated cheese n ham !! Drinking soda water but hey the sun is out hope n z warming up nicely xx

Hi Emma,

Sorry, I realise this is a dated post. I hope your husband is doing well.

My partner is on week 6 (finally!) of radio and chemotherapy, he is on cetuximab rather than cistplatin and has already had a neck dissection. He is really struggling with the thick secretions in the back of his throat, even talking is making him gag right now. He has a nebuliser , has used it twice but he was sick and is now frightened to use it again. Do you or your husband have any advice? We know he is near the end but also know it’s going to get worse before it gets better. Any help would be gratefully appreciated.

Thanks you

Helen 

hi he know this us Hazel I am 12 weeks post radiotherapy,try n get him to drink liquid as it helps tonghin the mucus get your nurss or dr to prescribe carbusistine which also helps thin the mucus I have a blog 

www.radioactiveraz.wordpress.commwhre I go through ut week by week it may help yiu. 

Re the nebuliser try and stick with it I was doing ut at least 6/8 times a day don’t always use saline u can use plain tap water .

itbxoukd getbworse unfemember a few weeks after radiotherapy finished sat in floor cry8ng in middle of night it does get better but baby steps all the way 

any question should or help justbshout Emma has helped me no end her an Paul her hubbybare a minefield if info

keep on day by day .today I had cheese on toast steak pie and tea salmon fillet. Tonight 2 celebration chocolates ok took me an hour but result !

hazel

Hi,

I have just read your last post and hope that you feel much better. 

I am due to start the same course of treatment as you next week and have been told to expect the side effects that you are describing. I know that there is a positive outcome and am holding on to that.

In the mean time, sending you lots of good wishes and hoping that your Christmas is a bit happier.

Allie