Husband diagnosed with stage 4 pancreatic cancer

My husband and I are both 53, two weeks before Christmas he was diagnosed with terminal pancreatic cancer.  Our world has been turned upside down by the diagnosis.  We were looking forward to enjoying ourselves more in 2016 as 2015 was a difficult year.  I can not even begin to contemplate not having by husband around as we have been together since we were 16, we have been so lucky to have such a wonderful long relationship. 

I am struggling with the emotional side of it all.  My husband seems very accepting and just wants to organise everything to make it easier for me when he is not longer here.  He stuggles with the not knowing how long he has?  He has started palative chemotherapy and the side affects do not seem to bad at the moment.  Though he is very tired. We have three children and 2 grandchildren who have all taken the news very differently.

 

Parents
  • Hi Frankinsence, I lost my husband August 2015 from pancreatic cancer. He was diagnosed in August 2014 and had the whipple surgery in september of 2014. His mass was at the head of the pancreas only 2.5cm. They discovered after surgery that it has spread to some lymph nodes. He went into a clinical trial of 5FU but he was only able to do 4 rounds of the chemo as they had removed so many organs and parts of organs during the surgery that the chemo was too much for him. After having to quit the trials we were basically left to our own devices. He had blood tests and scans but when his CA 9-19 markers went up to 450 nothing was mentioned to us and from there the cancer spread like wild fire. When they told us in July that he was stage 4 my husband was unprepared. He made it about 8 weeks. We went into pallitive care right away and I was able to keep him home. The pallitive care nurses and Dr's were amazing and when my husband passed away it was very peaceful. It has been almost 5 months now and the I am still struggling emotionally. I don't know if that will ever go away. He was my soulmate. The love of my life. I have no advice. I believe that for myself the only way is to be in the moment and don't look past tomorrow as it becomes too much too handle. My thoughts are with you and please come back any time. The people are wonderful here.

    Cindy

Reply
  • Hi Frankinsence, I lost my husband August 2015 from pancreatic cancer. He was diagnosed in August 2014 and had the whipple surgery in september of 2014. His mass was at the head of the pancreas only 2.5cm. They discovered after surgery that it has spread to some lymph nodes. He went into a clinical trial of 5FU but he was only able to do 4 rounds of the chemo as they had removed so many organs and parts of organs during the surgery that the chemo was too much for him. After having to quit the trials we were basically left to our own devices. He had blood tests and scans but when his CA 9-19 markers went up to 450 nothing was mentioned to us and from there the cancer spread like wild fire. When they told us in July that he was stage 4 my husband was unprepared. He made it about 8 weeks. We went into pallitive care right away and I was able to keep him home. The pallitive care nurses and Dr's were amazing and when my husband passed away it was very peaceful. It has been almost 5 months now and the I am still struggling emotionally. I don't know if that will ever go away. He was my soulmate. The love of my life. I have no advice. I believe that for myself the only way is to be in the moment and don't look past tomorrow as it becomes too much too handle. My thoughts are with you and please come back any time. The people are wonderful here.

    Cindy

Children
No Data