Hi Everyone, my my name is Mandy and I am new to all this. My husband Allan was diagnosed with multiple myeloma in June last year. I am 46 and he is 44, we have 2 grown up daughters and live in North Wales. Allan got a limp in January last year, thought he had pulled a muscle but he had a massive tumour on his hip which had caused it to fracture and tumours on his spine, and behind one of his eyes. His bones were becoming very brittle which we discovered when he broke his shoulder opening a drawer. He was in a great deal of pain and ended up in Clatterbridge Hospital for 4 weeks undergoing radiotherapy. He was transferred to Chester Hospital where he started a drugs trial, by now he was practically bed ridden and spent nearly 8 weeks in hospital altogether. When he came home he was in a wheelchair and we had had to have the house adapted. Things started to improve, the trial was going well and the tumours were shrinking. After 6 months the trial ended and he was looking so much better, he was walking again with crutches and we were all hopeful that he would go to Christies for a white cell transplant. He had a pet scan and they said all the internal tumours had shrunk to practically nothing, he had an op to mend his shoulder with a pin and screws and we were happy with how things were going. Then he got a lump on his back and got a chest infection. He ended up back in hospital with a chest drain in and they said he was lucky he had come in when he had. They did another scan and discovered his cancer was back, within 2 weeks he had tumours everywhere so they put him back on chemo but the really strong stuff this time, thalidomide and 24 hour chemo for 4 days. It was really tough on him but he stayed positive. The docs did another scan and that's when it all went bad. 3 weeks ago they told us that the chemo wasn't working and that the tumours were growing faster than the chemo could shrink them and that there was nothing else they could do except stop treatment and make him as comfortable as possible. They said he was dying and that he had only weeks left to live. We were utterly devastated and I just fell apart. Since then I have brought him home which is where he wants to die and I am nursing him myself with nurses coming in once a week for now. He is doing really well, eating and drinking and sleeping well and as I said, it's been 3 weeks now since he was pronounced terminal. We are fighting on and I am determined to try to keep him here for as long as I can. Luckily he doesn't have much pain and his medication is keeping him that way. So that's where we stand at the moment, we have moved into a sheltered accommodation bungalow which makes things much easier and he is in a hospital bed in the lounge, I sleep on the sofa to be near him at night and that is our story. Sorry if it's a bit long but it's the first time I have written it all down and got it off my chest so to speak. I am hoping to be able to chat to other people who are also going through this as I feel I have become very isolated and alone. Thank you for reading this. Xx