Palliative care at home

I am new here, nursed my darling husband  of 30 yrs at home palliative care for past 12 weeks till he passed 07/10.  Diagnosed start July with sciatica ended up being bone cancer of back L2 and sacrum, primary lung , adrenal gland with brain mets. Privileged to look after him though it was tough, was administering sub cuts for last 2 weeks.  Have some handy hints to assist with how to turn as he was 6 foot 3 and I am less than 5foot tall.  Nothing would stop us from providing best care possible , thankfully supported by nurses once a day a great palliative care team

  • Hi Kathy

    Welcome to the forum, but I'm sorry to read the terribly sad reason why you're here.

    I noticed that you'd posted a while ago and not received a reply . . . sometimes the weekends are 'quieter' times on the forum, but I just wanted to say hello.

    I'm sure your willingness to share your hints about nursing your husband at home, will help support many other carers.

    Sending you virtual hugs, Jo xx

  • Thank you Jo for warm welcome, He will always be with me which is of some comfort.  Once I stop wandering around the house in a state of confusion things will improve.  I have great support from family and friends, they are only a phone call away.  I intend volunteering with the palliative team here to do whatever I can be it visiting others or providing respite care.  We will turn something bad into something good.  He spent his life helping others and his legacy will live on

  • A warm welcome hug from me too Kathy!  Am so sorry to hear of your hubbie's illness and passing.  I am pleased to hear you have a lot of family support and please be assured that you will have many a listening ear here too when needed.  I am sure your help will be much appreciated by the palliative team and the families of others facing such a difficult time.  Take care dear lady xxxx

  • Max thank you,

    My family is really in Scotland

    I live in Australia so our son is born here, now 26 and is of massive support with his delightful wife and 2 littlies.  My husbands family are absolutely Magic and I love them to bits.  I am so fortunate.  The old man is now back home with me, picked him up last FRi, and I can talk, nag or berate him when I feel like it.  He is here where he belongs, with his pets and the old dragon - me.  What else would a fella need.....?

  • Hello Kathy im so sorry to hear of the sad loss of your hubby ,I to nursed my hubby at home for the last months of his life until carers came to help in the final few days so I know how hard it is but so glad I could do it for my Tony .You are an amazing strong and chirpy lady who is inspirational ,but take care of yourself  and give yourself time to heal  ..BIG HUGS ...Susananne x

  • Hi Suzanne, thank you for your kind words,

    This forum has been of great benefit to me even though I have been only on it for 24ish hours. My dear sister in law is following it also, as she like me has learnt a lot on the past 3 months.  Thankfully I asked her for a sleepover the last weekend my darling was here with us to help with turning, bum change or whatever was required.  In my point  of view no point saying 12 months down the track I thought of asking for help but didn't want to impose ...... So I asked and she came to our rescue willingly, spending time with her big brother, alleviating the pressure from me and carrying out labours of love, moisturising his arms, back etc, he purred in appreciation.  This time we cannot get back but jees, we did all we could do to keep him comfortable and he went surrounded by love.  She is happy she had that time with him and I appreciate her more than words can express. Xx

  • Hi Kathy

    Having read and replied to your kind response to me on Haff's thread have now found your own. Sorry for the late welcome to the forum but I see the forum buddies have been helping with the welcome - a lovely crowd here who I have had keeping me company for a good long while now (hubby was diagnosed as terminal Feb 2012 with mesothelioma).  You have a wonderful way with putting things and I hope the palliative care team there will welcome you with open arms when the time is right for you to join them.  Its not always easy having a sense of humour but it sure does help on the darker days and your husband was lucky to be surrounded by such love.Sending virtual hugs. Jules x  

  • Hello Kathy, I just wanted to add my welcome to you, I'm so sorry to read of your loss. What a lovely lady you sound, and with an amazing strength of character too.

    Look after yourself,

    Carolyn.

  • Hi Carolyn

    Apologies for delay in response, email been playing up for last 2 days. Two weeks now since I farewelled my soul mate.  Not easy but plodding on. Amazing support from work mates, will return to work 03/11 for four weeks before being retrenched but to be honest that is the least of my worries.

    Thank you

  • Hi Kathy

     

    Have seen how you have been responding to others and have finally tracked down your own thread (again!!).  It reminded me that you were due to return to work on the 3rd.  How you doing? Jules