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Just me - ocular melanoma, opted to have my eye removed

Juliejulie
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Hi im julie, I found out in June I had cancer in my eye , and ocular melanoma . I was given 3 options . I opted to have my eye removed . It will be only 4 weeks on friday , I've had nothing from the team . I don't speak to anyone till the 20th of October.  Im struggling . I thought it would be easy I have another eye but it really isnt . X x x ️ 

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    Hi Julie,

    I'm so sorry you haven't heard from your team & you are struggling. Were you given a contact number for the Specialist Nurse? If you are needing information from them, go on the hospital website & you should be able to find the nurse's number or ring the number on your hospital letters.

    Meanwhile, if you aren't already aware there is a great cancer charity called Ocumel - lots of information that will help you and they have a support number to call. They also have a patient support group that you can join to speak to other ocular melanoma patients Homepage - Ocular Melanoma UK

    Good luck with your treatment & please let us know how you get on,

    Angie (Stage 3 superficial spreading melanoma since 2009)

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