Hi Mushroom, I'm so sorry it's just devastating. I was diagnosed on 12th September I had gnawing pain upper right quadrant. Local advanced pancreatic cancer in main body 2.9cm with celiac vein involvement. I have my first oncologist appt this Thursday. Im hoping the chemo will reduce tumour to allow potentual surgery.
Hi Sentonsands, It’s the most awful news. My thoughts are with you. It’s shocking news, not only for you but for everyone around you. I’m about two months ahead of you I guess. I’m at 5.1cm tumour on the tail of the pancreas spread locally to the lungs. I started chemo six weeks back. Every Tuesday. I won’t lie but starting chemo isn’t pleasant but it gets better. You start to manage it and cope.
Wishing you the very best for Thursdays appointment.
Thank you so much Mushroom300 for your kind words. Im so glad your managing your chemo I have been told its tough. Its the waiting that's also frightening. I will keep fighting . I can tell your fighting it! Keep positive.
Hi, I was diagnosed with a tumour in my pancreas last Thursday19th, I’m still in shock, was told menopause, ibs, then my diabetic bloods went sky high , and my urine turned brown. I was sent for a C/T scan and told by a junior doctor at 10.30 that night. I’m 57 and very very scared, I’m still waiting for …..what happens next
I know exactly how you are feeling. Nine weeks on and it still hasn’t sunk in with me. I thought my issue was IBS… I was very wrong.
Its a journey none of us thought would happen to us.
They got me on chemo within 3 weeks, every Tuesday
just leaving now for my 6th treatment.
Chemo will have its ups and downs, I can’t say you get used to it, you just adapt. I have no sickness now after treatment, where as at the start I did.
The Cancer charities have been very good, a small thing was getting a blue badge. It’s helped a lot they can help.
Hi Nickerynook, I'm so sorry this is happening to you and your love ones. I know iits really scary Im still in shock as well, as Mushroom said a journey we never thought we would be on. I was at my doctors end June with upper right pain, I ended up having H Pyliro and my doctors also thought IBS. 2x CT scans one contrast, and MRI contrast, EUS FNA 26th August 3 biopsies pancrease diagnosed on 12th Sept . I have my first oncolgy appt this Thurs. Please try not to do doctor google, as I did, the cancer sites are best.
I hope your feeling ok after your chemo today . Which chemo are you on ? I can't imagine how your young son is feeling watching you going through this, it brought a tear to my eye.
My son is my biggest heartbreak, we have been inseparable since he was born. With all this going on my only concern is leaving him one day. BUT this also is giving me reason to fight this *** and he’s supporting me brilliantly.
Having the chemo is relatively easy. You get a cannula fitted and sit there for 3 hours on the IV. Take a good book.
Two chemo drugs are given separately, gemcitabine is the main one, followed by another I cant pronounce.. Will find out.
So it’s 30mins saline flush, 30mins drug 1, 30 mins saline, 30 mins drug 2, 30 mins saline then home.
Whilst sat there your hands and feet can become uncomfortably hot and tingly. They have cooling socks and mittens that help.
For your first oncologist meeting I would politly suggest writing all questions down before hand as you can stray into other topics and forget the important questions you need answers for…
Hope you get all the answers you need Thursday
Its clumsy of me to say “good luck” but you know what I mean.
