Hello: I have secondary liver cancer which is terminal

Hi, just a quick hello, i have secondary liver cancer which is terminal. ive been lucky enough to be able to have immunotherapy which is doing a great job of controlling my cancer. I have got my head around my diagnosis but if im honest im scared stiff. Anyway nice to meet you all.

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  • Why do you feel lucky to be able to have inmuntherapy i had two of this and i swallon up like a ballon which lead to me having to have a drain fitted for the fluid retained 6ltr i might add.This in turn created blood clogs omedema legs had to be bandaged.shortness off breath could hardly walk with the weight of my legs.my consultant advised agaist having it again but my family wanted me to have it just once more.Do i go with what my family says or do i take the advice of my consultant...Can anyone help

  • Hi Stormster

    I consider myself really lucky to have been prescribed cemiplimab immunotherapy by my oncologist.I was in a bad way a year ago and this has shrunk some of the tumours and stopped the others advancing. My side effects are fatigue, extremely itchy rash, some odema in lower legs feet, I take lots of short walks to help with it. I also get short of breath. On plus side I'm celebrating New Year which I did not think I would make.  But I know that everyone reacts differently and some of the side effects can be life threatening.

     If your oncologist recommends you discontinue treatment, I would take their advice. I had a break of two cycles on oncologists advice to reduce side effects. All the best for the New Year and whatever decision you decide to take.

    Ed

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  • Hi Stormster

    I consider myself really lucky to have been prescribed cemiplimab immunotherapy by my oncologist.I was in a bad way a year ago and this has shrunk some of the tumours and stopped the others advancing. My side effects are fatigue, extremely itchy rash, some odema in lower legs feet, I take lots of short walks to help with it. I also get short of breath. On plus side I'm celebrating New Year which I did not think I would make.  But I know that everyone reacts differently and some of the side effects can be life threatening.

     If your oncologist recommends you discontinue treatment, I would take their advice. I had a break of two cycles on oncologists advice to reduce side effects. All the best for the New Year and whatever decision you decide to take.

    Ed

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