How not to ponder, I don't know. But I want to send my support. I had surgery 17 months ago to remove a retroperitoneal sarcoma. Never heard of a sarcoma before then. A few other things had to be removed too. I send my very best wishes.

Thank you so much for replying, sorry it took me so long to respond. It is heartening to hear from someone else who has hard sarcoma (I find it  hard having such a rare cancer and all the uncertainties that comes with it) I sincerely wish you good health.

I am so glad you have returned. I can quite empathise with you. Have you had your scan? I had one in June and it was OK - great relief! I am due for a chest x-ray in September. I have multiple nodules. Apparently, they are quite common, even if one has never had this scary word.

Hi, I have just had another CT scan, previous one showed multiple tiny nodules, hoping this is just my ‘normal’, I have to wait around 4-5weeks for results so I am trying to just forget about it, as I have worked it worrying won’t help! It has been such a whirlwind of scans, a major operation and I am just about to start 6 weeks of radiotherapy - I could just do with no more bad news or bombshells for a while…x

I understand about the whirlwind. I was diagnosed with retroperitoneal liposarcoma in October 2023 and had surgery to remove it the next month. The waiting for results can be so stressful as it gets nearer the time of results. Good luck with the radiotherapy.
Keep writing here. I found that the people in this forum have given me tremendous support.

How is your  radiotherapy?

How is your  radiotherapy?

Hi, thanks for asking, I start next week, not looking forward to 6 weeks of commuting to London daily but will be good to get it done and 

Good luck for next week.

Does it have to be done in London? is there a possibility of being able to have it done locally?

Unfortunately the specialist team is only in London. 4 hours commute (2 there, 2 back) for 15 minutes treatment! Day two done and ok so far, fingers crossed I  don’t get too tired as it progresses 

I shall keep my fingers crossed for you.
I thought I would ask because my retroperiteneal (sp?!) liposarcoma and other things were removed in London but afterwards I was transferred to a local hospital for checkups.

How is life now?

1. Good to hear from you. Unfortunately I found out in January I now have lesions in my lung and spine, in a wierd way now the worst has happened I worry less. Whilst incurable, I am having 6 rounds of chemo in London and so far seems to be responding well. The lesions were also operable so the hope is the ops will be easier after chemo and if it doesn’t appear elsewhere I may remain well for a time. So I am on a very different journey now but doing my best to stick around long enough to at least see my son finish school etc

i Hope you are well

A different journey indeed. However, you are worrying less and seem calmer. Incurable no longer seems to mean the awful thing that it once did. Keep your chin up, and well done.