Rare cancer- How to deal with the unknown/ scanxiety

I am newly diagnosed May 2025 with a rare sarcoma, I have been lucky in having an op to remove the tumour quickly , however the prognosis for this cancer is bleak if it has spread to lungs and I have lots of nodules and have a follow up scan in 3 weeks. I dont feel ill. I am still recovering from the major op and my mood ranges from having faint hope I will be OK for a while,  to thinking I need to be realistic and wind up my affairs now to make it easier for my family when I am gone (for those with this cancer when it has spread it seems there is no/limited treatment options and stats say an average of 9 months) Any advice on how people manage to stay focused on the here and now and not ponder on what is coming in the future?

  • How not to ponder, I don't know. But I want to send my support. I had surgery 17 months ago to remove a retroperitoneal sarcoma. Never heard of a sarcoma before then. A few other things had to be removed too. I send my very best wishes.

  • Offline in reply to Mary.

    Thank you so much for replying, sorry it took me so long to respond. It is heartening to hear from someone else who has hard sarcoma (I find it  hard having such a rare cancer and all the uncertainties that comes with it) I sincerely wish you good health.