Rare cancer- How to deal with the unknown/ scanxiety

I am newly diagnosed May 2025 with a rare sarcoma, I have been lucky in having an op to remove the tumour quickly , however the prognosis for this cancer is bleak if it has spread to lungs and I have lots of nodules and have a follow up scan in 3 weeks. I dont feel ill. I am still recovering from the major op and my mood ranges from having faint hope I will be OK for a while,  to thinking I need to be realistic and wind up my affairs now to make it easier for my family when I am gone (for those with this cancer when it has spread it seems there is no/limited treatment options and stats say an average of 9 months) Any advice on how people manage to stay focused on the here and now and not ponder on what is coming in the future?

  • How not to ponder, I don't know. But I want to send my support. I had surgery 17 months ago to remove a retroperitoneal sarcoma. Never heard of a sarcoma before then. A few other things had to be removed too. I send my very best wishes.